
Caregiving has levels. You usually enter in and see gradual changes much like walking into the ocean. Gradually health deteriorates and you find yourself getting deeper and deeper. Before you realize it, you are swimming in demands for your time, energy and attention.

At other times things change rapidly due to an accident or sudden illness. Waves wash over you and it is all you can to to hold you and the one you care for above water. The caregiving for someone with Alzheimer’s or other related disorders never eases because of improvement or recovery. The demands and level of care only intensify.
To survive this level of caregiving you will have choices to make. One choice is to include family members and close friends. Each one will have a role to play. You must ask who is willing to help and how they can help.
Begin by thinking of the person needing care and yourself inside a circle. That circle is surrounded by a larger circle. Then they are other circles as you move out.
The caregiver in the inner circle is the primary caregiver. This person is usually the spouse or most responsible relative. You will provide most of the daily care.
The second ring of the circle holds the periodic caregiver. This is a family member or friend who provides support to the primary caregiver. They usually see the need and assist without having to be asked. They should make themselves available whenever help is needed.
Next you have the peripheral caregivers. These are people who make occasional visits. They may assist with specific needs when asked.
Finally, you include (or try to include) the passive caregivers. These are the family and friends who either are in denial or forget that you are shouldering a heavy load. I once heard them referred to as seagulls. They fly in, poop on all you are doing and then promptly fly away again. Share information with them when asked. Forgive when you feel they have neglected you and your loved one and seem uncaring. It isn’t worth letting these feelings fester and turn to bitterness. Accept that you are doing your best and try not to judge.
Once you know where the family members and friends line up in the circle, you may decide you have to enlist professional caregivers. These include trained and untrained care providers that you must pay.
Outside of this circle are options such as respite care and finally an assisted living or memory care unit. When you feel like you are sinking, let them be your lifeguard. There is no shame in making choices that allow you to survive.
Only those inside the first rings of the circle should help you make those tough decisions. It is wise to seek advice from clergy and physicians when you need it. You are strong and capable but you will need help.
Song for Today
Word for Today
Plans fail for lack of counsel,but with many advisers they succeed. Proverbs 15:22
Prayer for Today
Heavenly Father,
You know the circumstances I am in at this time. I humble myself and admit I cannot do this alone. I need you first and foremost as my counselor. Give me wisdom as to who I should include in my circle of care. Show me those who will stand beside me. You sent Aaron and Hur when Abraham grew weary and tired. I know that you will send the help I need as well.
I praise you for being my strength when I grow weary. Help me to accept that not everyone will meet my expectations. Forgive me when I forget this. Guard my heart from bitterness and anger.
Amen










