The Big Thing

A child is often asked “What do you want to be when you grow up?”. They are then encouraged to chase their dreams. Is what they do for an occupation as important as who they become as a person?

Be patient with me and you will understand how this pertains to caregivers. For far too long I have watched young people spend so much time waiting for God to give them something big to do that they miss the very things in front of their faces that God has for them to do. Some of these people continue to go through life for years chasing a big “dream” that never manifest itself.

History has shown us that God sometimes has a path for us to follow to prepare us for the “big” thing we are to do. David honed his skills while tending sheep, only to be summoned to be anointed as a king. A couple of fishermen stepped out of the boat to become disciples. Ruth was gleaming wheat when she married and bore a son who was in the linage of Christ. Sometimes God wants us to simply live a life that brings glory to Him. When this is our focus, He will show us what is big to him and how you are to do it.

In Matthew 25:40 we are told:
“The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.” When you become a caregiver what counts is who you are. Are you a person who can humbly show compassion, love, dedication, patience and emotional strength each and every day? I sure hope so because this is the “BIG” thing God placed in front of you to do.

When speaking at a symposium a few years ago, I looked into the eyes of caregivers and told them that if they didn’t feel a need for God in their lives, they would due to the trials of being a caregiver. I still feel this is so very true. God provides strength, courage and insight when they are needed. He has even ordered your steps to prepare you for this “big” thing.

I never imagined that I would one day be a caregiver for my parents. When those days arrived though, I could look back and see how God had placed me into positions that had prepared me. He has done the same for you. This time will allow you to stretch and grow into a better person. What matters is not what you did in the past, but who you are because of it.

Dig deep into your heart and ask God to show you how to carry out your tasks day by day. The little things done over and over have prepared you well. When things are difficult reflect back on how God guided you through the little things and move forward knowing he will be with you each and every day now just as he was then.

“We delight in the beauty of the butterfly, but rarely admit the changes it has gone through to achieve that beauty.”
Maya Angelou

You are being transformed into a beautiful caregiver. This is you “BIG” thing. Most likely you never dreamed of this as a child, but here you are. You can do this!

Word for Today

1 Peter 3:3-4

Your beauty should not come from outward adornment, such as elaborate hairstyles and the wearing of gold jewelry or fine clothes. Rather, it should be that of your inner self, the unfading beauty of a gentle and quiet spirit, which is of great worth in God’s sight.

Song for Today

Prayer for Today

Hello God,

I think I finally understand the your big thing for my life was a surprise. Here I am being asked to be a caregiver. This makes me realize that it is not a burden. It is an honor. Give me the ability to carry this task out with beauty and grace. Let me do this to bring you glory.

Amen

Who Should the Caregivers Be?

Quietly I listen as an older caregiver shares his story. He explains that his children and grandchildren are way too busy to help him with caring for their mother. He mention their jobs, hectic schedules, responsibilities and living far away. He then begin to justify their reasons for not being able to help.

Quietly I observe the expression on his face. There is no sparkle in his eyes. Sadness underlies his words. It is like watching air slowly leak from a balloon. He has resolved himself to accepting that the right thing for him to do is bear the load of caregiving alone.

He told me that he is only seen as complaining so he just keeps his thoughts and burdens to himself.

My heart breaks. I have heard his story way too many times. It is far more common than hearing about children who share the load of caregiving.

I understand that their children are busy. I was busy. I gave up my income to be available for my parents. I was stretched thin and exhausted. It was demanding. Some parts were hard. God gave me wisdom, met our financial needs, answered prayers and taught me how to forgive and show grace. I am so much stronger from this journey!

My audience I want to address today are the siblings, children, granchildren, nieces and nephews of those caregivers. What is more important than hearing pleas for help from a person that once made sacrifices for you?

I hear many speak about their elders negatively because they believed in pulling yourself up by bootstraps and keep going. You blame that attitude as something that hurt you. You spend your time sitting in your feelings. I agree that each generation has their own way of handling difficlt situations. We all make mistakes along the way.

Have you ever considered that the older generation had issues, problems, pain and heartaches just like you? They rarely made people aware of their battles. They played their cards close to their chests and asked God to be their therapist and counselor. Still trusting God to get them through, they let go of anger and disappointment and forgive their family who is too busy to be involved.

Baby boomers are the most misunderstood and resilient group of people I know. Instead of mocking and laughing at them, roll up your sleeves and help them. They made sacrifices for you.

You can step up. Your loved one with dementia is still very much alive. A wall of confusion may surround them but they know your voice and touch. Find a way to stay connected. If you normally watch a ballgame with friends, go watch with your dad. If you meet a friend for lunch on Sundays, take lunch to your parents and eat with them instead. Take ice cream and your grandchildren over to visit. You may find this brings healing to everyone involved.

Do something! The time for being selfish comes after they are gone.

A caregiver and I were discussing the choices we made. He commented that we could sleep better at night because of his choices. If you are reading this as a caregiver, I hope my brutal honesty will wake your family up.

Some of my favorite memories are times spent with people living with Alzheimer’s disease. They make me laugh and cry. They have taught me how to love more deeply. Every act of love makes our lives richer. I have met a woman who carried the olympic torch part of the way to Atlanta, men who have medals of honor, pianist, vocalist. patent holders, former educators, ministers and seasoned travelers. I listen to their stories. I talk to their family members to verify the stories. I then return and listen again and commenting so they will keep sharing.

With my own parents, I learned more about their lives by being their caregivers. Maybe you have some stories to hear and hands to hold. Be courageous and accept my challenge to step up. You may sleep more soundly.

Word for Today

Romans 12:10

Be devoted to one another in love. Honor one another above yourselves.

Song for Today

Prayer for Today

Dear God,

Thank you for always having time for me. You are the one I run to when life is difficult. Please help me to see those around me who need me to make time for. I have choices to make and am guilty of making selfish choices. Open my eyes, ears and heart to be aware of those in diificult times and give me the courage to respond with forgiveness, love and an open mind instead of making excuses. So me how to honor others more than myself.

Amen

Sometimes a Simple Little Thing Impacts You the Most

Any fan of The Princess Bride knows that a kind grandfather comes over to read to a sick grandson. That simple little thing turns into a beautiful day full of fun and adventure for both of them.

Last week my hubby and I woke up sniffling, sneezing, aching and miserable. It has been many years since either of us have had the flu. He mentioned this fact to our friends who lives next door. They apparently went right to work on a lovely pot of homemade chicken soup.

That pot of steaming hot chicken soup arrived on our porch a few hours later. This nourished our souls as much as our bodies.

There have been many times over the last 18 years that someone has done what they considered a simple small thing that made a huge impact on our lives. They took time to hear God’s voice letting them know that we were lonely, weary, exhausted, hurting and in need of a little reminder that others loved us.

I often went to my mailbox to discover a card or book from a friend. One day a little box arrived. It was a bottle of Calgon bath wash with a note saying “I can’t be there with you to take the hurt away. Take a bath, relax and know I wish I could be there to take you away”. The blessings came in many other forms as well. God fed my stomach and heart with family members bringing a meal when I had been sitting in a hospital room for days with a parent.

On other days it might be an unexpected visit to pray for me and hug me. A friend drove 5 hours to attend my mom’s funeral when they had just undergone a major surgery. Another friend drove 3 hours to just hold us as my mom was passing. The list of things that happened is way too long to share it all.

Many wonderful family members, friends and even strangers had a huge impact on my life. All of these simple acts of love reminded me of my parents that I was taking care of. They were perfect examples of being a blessing to others. Most of their little things they did were never seen except by the recepiants. They gave and acted with sincere hearts of love.

I hope that God places people in your lives with generous hearts full of love. Actually there are vast numbers of people who make sacrifices for others. They see themselves as doing simple little things to help a caregiver. That one little thing is so much more than you know. That caregiver may be at what feels like the end of their rope.

What caregiver do you know that needs a little kindness?

Here are some ideas for you to consider:

Take flowers
Make them a meal
Offer to run errands
Offer to clean
Provide respite care while they nap or take a walk
Send a card or small gift
Bring cookies, ice cream or their favorite dessert
Call and ask if you can bring a grandbaby by
Offer a hug
Surprise them with a visit to a spa
Plant flowers for their porch
Mow the lawn or shovel snow
Be creative!

I heard ” I am praying for you” all of the time. I believed they were and appreciated it. The ones who added feet to those prayers blessed me unbelievablely.

Word for Today

Colossians 3:12

Therefore, as God’s chosen people, holy and dearly loved, clothe yourselves with compassion, kindness, humility, gentleness and patience.

Song for Today

Prayer for Today

Dear God,

Today I thank you for every act of kindness you have shown me.

Amen

The Heart of a Caregiver

Resilience

the capacity to withstand or to recover quickly from difficulties; toughness
the ability of a substance or object to spring back into shape; elasticity:

Caregivers are some of the most resilient people I know. They have their hearts stretched each day as they adapt to that day’s demands. It requires loving deeply with little return of that love. The caregivers memories remain intact and those memories allow them to move forward. I see this when talking with spousal caregivers. When their own hearts are broken and filled with loneliness, they move on clinging to the days when their spouse would wrap their arms around them when life got tough. Now they must carry the load of tough days without that comfort.

God is the comfort they rely on. Others, including children, are struggling with their own emotions and the loss of the mom or dad they once knew and cannot be sources of comfort. Faith in God’s provision is what becomes their rock and shelter. God offers the strength to be resilient and bounce back from the pain.

Sometimes I am amazed at how strong caregivers become on the journey. They learn to become experts at communication skills when their old way of communicating is no longer possible. They slow down and read facial expressions, changes in behavior, and slow their lifestyle down to match their loved ones pace. A huge amount of self sacrifice occurs.

The sacrifices make us a better person. God hears our cries. I know that God purged things in my life as I focused on my parents needs rather than my own. I learned to distinguish wants from needs. God whittled away the selfish desires and humbled me. If I had any hurts from my past, I had to allow God to heal those so I could forgive and love more deeply.

If you could see my heart, you would see the broken pieces that God has knit back together. Just as my body bears stretch marks from having children, my heart bears stretch marks from God enlarging it and giving me a greater capacity to love. Perhaps your heart is broken today and you need the ability to love more deeply. God is waiting for you to run into his arms so that he can heal and comfort you.

This is my story and God is writing it. I hope that you can find peace and healing so you can be resilient as a caregiver. You will be challenged. You will become exhausted. You will be pulled in many directions. Emotions will spill over. Waves of fear, uncertainty, frustration and anger may wash over you. Through it all you find moments of unexpected joy and blessings. All of this is normal. You can navigate and come out stronger if you let God write your story.

You leaning into love that you didn’t know you had.

“Whenever you share love with others, you’ll notice the peace that comes to you and to them.”

Mother Teresa

Word for Today

Isaiah 40:29

He gives strength to the weary
and increases the power of the weak.

Song for Today

Prayer for Today

Dear God,

Thank you for always being my strength. Some days I feel afraid and at a loss of how to be a caregiver. I feel ill equipped. My tears blind me and I fall on my knees.

You love me. You catch my tears and comfort me. I know I can only do this with your help. Please help me today.

Amen

Storm Preperations Have Begun

When you live in the south the word snow brings excitement. The word ice brings panic. We are hearing both words and live on the dividing line. Ice means downed power lines and trees are abundant on the farm and the roads leading to our farm. We are heeding the warnings and preparing for the developing storm.

Laundry is being processed, soups are being cooked and bread is being baked in case of a power outage. Thankfully, we have gas logs and solar backup batteries ready. Outside we are building a sheep shelter, moving the grill to a sheltered area, placing hay near the sheep and making sure the dogs have a safe shelter. These ice storms are rare but dangerous.

When you find out a loved one has Alzheimer’s disease, this is a storm warning. You should begin preparing yourself and your home before the storm hits. This may sound absurd considering absurd mean wildly unreasonable, and illogical. Your heart will not allow you to face the harsh reality that life as you have known it is about to be shaken and rocked in ways you can not imagine.

It would be unkind and uncaring for me to not make you aware of what the future may hold. Just as I am preparing for the snow and ice storm heading my direction, I planned for changes as my mom began living with Alzheimer’s disease. My dad was her primary caregiver, but should he have passed away first, I was next in line. This meant researching in home caregivers, assisted living facilities and physicians should I have to relocate mom to me. I lived with plans a, b and c in place. A suitcase was always packed and ready to go if dad called for help.

I traveled back and forth from my home to theirs for several years. These trips allowed me to be there for physician appointments and to evaluate how the disease was progressing. They also gave my dad a break. Each trip waas heartbreaking on the drive home. I would be making mental notes on what I had experienced.

Eventually, we had to hire in home help. Next we made a move to a memory care assisted living. Dad began to lose cognitive judgment and executive order skills. We moved mom to a skilled care facilty. In the last few months of mom’s life I moved both parents to facilities near me. Dad could walk from his assisted living to mom’s skilled care through a covered and enclosed walkway. I could be there as often as possible, which was usually about 5 times a week.

All of the decisions about moves and care plans had been in place before we needed them. We were on waiting lists knowing we could say no if we weren’t ready yet.

To be able to make these decisions, you have to research, observe changes, ask questions. Seek out an elder care lawyer for wills, power of attorney, trust, etc. Have hippa forms signed, make decisions on DNR orders, decide how to handle feeding tube decisions. Then gather family and friends to be backup support when needed. Trust me on this one. You will need support!

We started this blog discussing our stormy weather ahead. My husband and our neighbor are working together to prep for this storm. Life has taught us to accept and offer help. Caregiving has taught us that the load is lighter when we share it.

The word Alzheimer’s is one you will hear someday in your family or friend group.

Over 7 million Americans are currently living with Alzheimer’s disease, and this number is

projected to rise to nearly 13 million by 2050.

Now is the time to prepare for hearing those words. Instead of living in fear, live prepared. Find a seminar or support group and educate yourself.

Word for Today

Psalm 4:8

In peace I will lie down and sleep, for you alone, Lord, make me dwell in safety.

Song for Today

Prayer for Today

Dear God,

Life is full of storms that we must face. I trust in you to guide my steps as I prepare to face the storms. Give me your peace as th storm rages. Give me hope that you are in the storm with me.

Amen

Most Critical Mistakes I Made as a Caregiver

Caregiving is usually full of lessons to learn the hard way. Each and every caregiver I know can share their own stories of what they learned. I will share a few today from my own experience.

Communication is vital even when others do not understand or agree. I should have talked to my mom about her concerns and fears early on. My heart and emotions were reeling and I was afraid to. She had always been responsible and hid her own emotions well. This made it hard to know how she was processing information. Knowing how important it is to show empathy, I should have taken her hand and acknowleged that I was scared and sad too. Even if she did not vocalize her feelings, I could have let her know I was with her and understood.

I would have tried harder to help my dad understand how his own behavior would have to change. When you care for someone with Alzheimer’s disease what works one day may not work the next. We cannot argue and try to reason with them. Their reality and ours may be very different, but we have to move into theirs to be effective.

I would understand the behavior changes due to pain and fight placing her in a geri-psych unit without treating the pain first. We had a terrible experience when we placed mom in a memory care unit. They called about four days later and told me she was out of control and I had to take her to the hospital. She was angry anad aggressive which was totally not the person I knew.

It was late in the evening and the nurse was waiting on us. They took her straight into the emergency exam room. I called for someone to come and take dad home. When I came back into the room, they were testing for a uti infection. It was positive. The nurse lifted my mom’s top and saw red. I watched in horror as they removed her bra and she cried in pain. A nasty yeast infection was under her breast. The nurse saw my shock and asked where mom had been living. I told her and saw her spring into action to calm mom and immediately bring a physician in. I would not want to have been the person from the facility that answered the call when I heard his reprimanding.

I allowed mom to be admitted into the geri-psych unit because that is what they suggested. Today, I would have asked for a regular room for a couple of days to treat the uti and yeast infection. I would have stayed with her 24/7 and evaluated the anger and aggression. Then agreed to the other if behavior was still an issue. This was a hard lesson learned!

These units are necessary. The medications used do not always work. They try one and then another. This process sped the loss of skills and my mom never regained them. She had walked in and was talking well. We came out in a wheelchair and speaking fewer words. I knew she was overmedicated and began talking to her physician. He and I together decided to move mom to a skilled care facility where their medical director could ease her off of some of the meds.

These lessons are shared not to scare you, but to help you understand it is not easy to always know what to do. My mom would have lost those skills anyway as the disease progressed.

Caregiver stress is real. My dad was showing signs of poor judgment and decision making as mom’s disease progressed. I should have monitored finances earlier than I did. Someone not in the family had been talking dad out of quite a bit of money. He had always been a generous and kind man, so she took advantage of that. It was elder abuse. My brother and I confronted dad with the bank records and ended the situation thankfully.

We actually dealt with one parent with Alzheimer’s disease, one with mini strokes, one with cancer and another with what we thought was vascular dementia. When my mother-in-law was diagnosed with vascular dementia, I accepted that. As time passed it, I questioned the diagnosis and her physician had moved. Strange and stranger behaviors were happening. There were days that she came across as her normal self and others full of delusions and hallucinations. After her death, I found that one of the most unusual behaviors had a name, Capgas syndrone.

It is a rare psychological condition where an individual believes that a loved one has been replaced by an identical imposter. She would tell us her husband had been there. If someone reminded her that he was deceased, she would say “you know what I mean, it was the other him”. One day during a visit, she insisted that we were not the real us. We looked, sounded and acted like the real us but we were not the real us.

All the the above led me to believe that she actucally had Lewy Bodies which is often misdiagnosed. I would have tried harder to find her true diagnosis. It would not have changed how we cared for her, but it would have helped other family members understand what she was facing and helped them accept what we were dealing with.

My mistakes allowed me to learn to observe more, be patient, be diligent and remain humble. Trusting God to strength me and give me wisdom and grace got me through.

Word for Today

Philippians 2:14-16 (New International Version

Do everything without grumbling or arguing, so that you may become blameless and pure, “children of God without fault in a warped and crooked generation.” Then you will shine among them like stars in the sky as you hold firmly to the word of life. And then I will be able to boast on the day of Christ that I did not run or labor in vain.

Song for Today

Prayer for Today

Dear Heavenly Father,

Thank you for your amazing love and grace. You are where I run when I feel regret over my mistakes. You hold me in your arms and comfort me when I walk in pain. You pick me up and steady me to keep going.

Amen

It has been 10 years

Today I dedicate this post to my beautiful mom.

Dear Momma,

If you could see my heart, you would see little stitches sewn by God as he heals the gaping hole you left when you passed ten years ago. Every ounce of me wanted to take the horrible disease called Alzheimer’s from you. I coudn’t, so I decided to learn everything I could about how to help you and make you feel loved and cared for.

Little things remind me of you all the time. When I received red roses for my anniversary this month, I remembered how much you enjoyed them when Dad bought them for you. When I savor grapes, I remember how much you loved them. Wearing pieces of your jewelry makes me feel joy. An unfinished jigsaw puzzle sits on my dining room table. Actually, it is your dining room table we used to sit at together.

Don’t feel bad about me taking care of you. Those years are treasures for me. I saw little glimpses of all that you are. The inhibitions disappeared and I saw a fun woman giggling and humming. It was a side of you that you had hidden away to be a responsible and mature adult.

I watched a woman who was secretly called the sugar police by her sisters devour cookies, ice cream and desserts. It felt freeing to see you were more normal than we had thought.

I learned to love my family deeply from you. I learned to make sacrifices for others from you. I learned to clean from you, but it didn’t make me a total neat freak like you were.

You took phone calls at home from confused older customers at the bank. You gave children a ride to church. You rocked babies in the church nursery. You shared food from your garden. You would go to the nursing home to feed my grandfather when he wouldn’t eat for anyone else. You drove through the night to be there for my toddler while I was in the hospital with her baby brother. You even picked cotton by hand to buy fabric for my new clothes when I started to school. The wonderful memories of you are flooding over me now.

Your family has grown a bit since you were here. With my brother having six children, we have had a few weddings and a few more babies. Liz wore your ring at her wedding. She asked for a photo of you and dad to display. I chose a photo without noticing that you had that very ring on. We both teared up when we realized it. You have two amazing great-grandsons now. What a reunion we will have one day!

It was an incredible honor to walk on one side and have dad on the other as we walked you toward your final home. You and dad made me a better person. I love you so deeply and am looking forward to joining you in heaven when my life here is over. Give dad a hug and ask him to give you one for me.

Love,

Your daughter

My letter was how I chose to journal today. Journaling is one of the many ways I learned to cope. Realizing that being in the moment with my mom where she was in her mind at the time made taking care of her much easier. The years spent taking care of her long distance and in her home were difficult. Many lessons were learned about God’s incredible grace and strength. Moving mom to skilled care was heartwrenching, but dad visited daily and I did once she moved closer to me during her final days.

I cannot count the tears that rolling down my cheeks as a caregiver. I shed tears writing this post. Comfort was always found in knowing that God saw those tears. When Jesus came to his friend Lazarus’s tomb, he wept. If Jesus wept, then it is perfectly fine for us to weep as well.

You will find your own ways to cope. You will grow and stretch. In the end, you will be stronger than you ever thought possible. Keep giving it your best my friends!

Word for Today

honor your father and mother, and love your neighbor as yourself.

Matthew 19:19

Song for Today

Prayer for Today

Dear God,

I praise you for the time I had on earth with my wonderful mom. Thank you for walking with me each step of the way. You held me when I was broken. You comforted me when I was scared. You gave me strength to do things I never knew I was capable of doing.

I ask today that you do the same for anyone reading this. Pour unexpected blessings into their life. Send friends to share the load they carry. Give them peace at night to rest.

Amen

You Are What You Eat

Has anyone noticed all the the information talking about how certain foods cause or protect you from dementia? I see new ones every day. My personal thoughts are that the chemicals used to grow or preserve our food is the real issue.

Of course I am curious as any person with a family member who had Alzheimer’s. I want to provide my body what it needs. In the past I was guilty of feeding my family processsed food due to the cost of fresh food. I did the best I could but growing your own food is not always easy. It is time consuming and you need good soil.

Just a few minutes ago I was in the pasture helping my husband move our sheep. Yesterday was my day to wash the pile of eggs in our basket. If you leave fresh eggs on the counter they remain fresh for quite a while. Once they are washed we refrigerate them. In the summer we barter or gift friends. When they are really plentiful we freeze dry for using them in the winter.

My pantry has fresh honey, jams, jellies, vegetable soup, pickled okra and relishes. The freezer has grass fed beef, locally sourced pork and vegetables. Our goal is to grow all we can. We use no chemicals or pesticides. Rabbit manure makes excellent fertilizer.

This year we used our beeswax to make lip balms, candles and hand cream. Avoiding chemicals and modified seeds and hybrid seeds is our ambition. We save seeds as well.

Yes, I ran down a rabbit trail with this post. It is very freeing to be able to eat healthier since moving to our farm. We bought this place from my husband’s parents and they built a smaller home next to us. This is not where I ever expected to be, but seeing they were aging and one was showing signs of cognitive decline is what brought us here.

It is a return to my roots. Memories of running my bare feet through fresh tilled soil, riding on the tractor with my grandfather, gathering eggs with my aunt and sitting under the shade tree while shelling peas flood my mind. I guess a t shirt with GRITS would sum it all up because I am a girl raised in the south. In this return, I am more conscious of how healthy living feels.

Nourishing our bodies with good food and watching chemicals in our lotions, shampoos, and other things applied to our skin may just keep our health as great as we can. I see this as a prevention program so my mind remains strong as long as possible.

While you may not be able to grow your own food, you can grow what you can and avoid processed foods when possible.

I urge you to grow your food!

patio
raised beds
community gardens

Seek good sources!

visit farms or farmers markets that are organic
join a co-op for farm shares
barter a service or skill with a local farmer
See if friends at your church have eggs or vegetables

I know it is not easy to plant, harvest, cook from scratch and then clean! Look at it as an investment for your body. I am truly blessed to be at a place in my life where farming is our lifestyle. Moving here to be a caregiver has become a huge blessing now that my caregiving season has ended. All of the hard work saves on gym fees!

It is difficult to find the time to grow your food. Consider the benefits of making this a time to get outdoors with the one you take care of. Invite friends to join you. Isolation may fade away when neighbors drop by to see what you are doing.

God placed Adam and Eve in a garden to begin with.

Word for Today

For life is more than food, and the body more than clothes. Consider the ravens: They do not sow or reap, they have no storeroom or barn; yet God feeds them. And how much more valuable you are than birds! Luke 12:23-34

Song for Today

Prayer for Today

Dear Heavenly Father,

I think I understand how wonderful Adam and Eve’s lives could have been. We all struggle to pull weeds in our garden and in our lives. We have allowed both weeds to choke out your amazing goodness that awaits us. Give us the courage to pull the weeds that choke our hearts with fear, anxiety and hopelessness. Give us more faith to trust you and your plan for our lives.

Amen

Hiding the Stress and Pain

Some of us carry pain and stress inside. Others see a smiling face and admire our strength, especially those in our church. They know our trust and strength are in God alone. We do have peace, but even those who have faith and strength hurt.

Yesterday I saw a woman hugging and smiling as she entered the sanctuary. When I asked how she was, I saw a tiny hole in the “everything is ok” mask. A few questions coming from a fellow caregiver opened that hole and I saw weariness, tiredness and pain.

God began to remind me of the many times someone had not only prayed for me but actually put their arms around me and gave me a safe place to let the raw emotions escape as tears. I approached her and did just that. She sobbed as I prayed.

I know her faith in God is solid. I know she has a beautiful heart and spirit. I walked in her shoes not too long ago. I walked by faith as she does. I tried not to complain and assured others I was ok. That is all very true for me and my friend. We can be strong Christians and still feel things intensely. We feel guilty for not being all we can be to our family when caregiving takes so much of our time. We need to rest and have little time for it.

Do yourself a favor and confide to a close friend that you need prayer and to just be held for a few minutes.

“When you receive or give a (consensual!) hug, your brain releases a flood of mood-boosting neurotransmitters and hormones, including endorphins, dopamine, serotonin, and oxytocin”. neuroscientist Dave Rabin, MD, PhD.

Isolation and loneliness are common when you are a caregiver. That hug may be just what you need!

Men need hugs as much as women. We all hurt and need comfort at times.

Caregivers get caregivers. We all face similar problems. Some see this as expressing their love. Some see this as a burden. Some feel stuck with the job that no one else wants to do. We all have our reasons for being a caregiver. We all understand the heaviness of our job. That commonality allows us to share our stories and encourage each other.

As supportive as my husband was, he didn’t truly get the load I had been carrying until he was providing care for his own parents. I had to show grace and not hold it against family who had not walked in my shoes yet.

Friends of caregivers don’t wait until others ask for a safe place to talk and really be heard. Watch for signs of weariness or anger and offer to listen or give them a break. Helping provide care will open your eyes to how much is involved day by day in your caregiving friend’s life.

Caregivers don’t attempt to bottle up your emotions. Find a trusted friend, family member or support group where you are heard and understood. Take that mask off and shed a tear or laugh. God is the place we lay our burdens down. Friends can help us do this. Go find a place to shout if you need to. I have been known to do this in my car traveling home after caregiving.

Word for Today

Matthew 11: 28-30

“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.”

Song for Today ( My husband sent me this link when I had just left my mom’s side. I had to pull over and cry. Little did I know my mom would be in heaven less than 2 weeks later. 2 days from now will be 10 years since I said goodbye. Miss her all the time.)

Prayer for Today

Dear God,

Forgive me for the times I try to do this job of caregiving all by myself. I thank you for sending Jesus to assist me when I am weary and burdened. I thank you for people in my life that came by my side to encourage me.

Open my eyes to other caregivers that need someone to hug them and pray for them.

Amen

Merry Christmas!

Two posts for one today. I just wanted to add this post before the end of the year. This is a time I have set aside to celebrate the birth of Christ and the upcoming anniversary with my husband. My mind is racing with what the future holds.

We were so young when we began this journey of life together. Reflecting over the years we realize there have been too many times we put things off until later. At our age, later is here. Leading a caregiver support group means hearing a lot of stories that ring true for us. Too many of my caregivers talk about the plans for their retirement years that unraveled due to Alzheimer’s invading their life.

We are choosing to do a few of the things we enjoy that we can afford to do.

slow down and enjoy sunsets
sit by the firepit and watch meteor showers
fish on a pretty day
garden
tend our sheep
visit with our friends
take a drive in the country
volunteer
eat when hungry….sleep when tired

You get the idea. We have a lower income now so we are learning to be content with what we have. All of us look ahead and face a question. How long do we have? Make the most of your time.

Caregivers have an uncertain future with their spouse. My dad learned to put my mom’s makeup on. Another man I know bought his wife who was in the late stage of Alzheimer’s a doll. Every night he tucked the “baby” in after she kissed him goodnight. Your love for each other will not die. You just learn to express it in a different way.

Sometimes the unexpected changes hold hidden blessings. Look for your blessings.

Word for Today

Proverbs 3:5-6

Trust in the Lord with all your heart and lean not on your own understanding; in all your ways submit to him, and he will make your paths straight.

Song For Today

Prayer for Today

Dear God,

We are so blessed by you. We praise you for the many blessings you have given us.

Amen