What Happens Now?

Graduating from being a caregiver is much like graduating from high school. The vast difference is you are wiser and well seasoned with life experiences.

When you graduate from high school you leave the close knit group of friends filled with hopes and dreams. A whole new world awaits for you to explore. You are excited and a bit afraid of stepping away from the familiar.

A caregiver has usually had their adventures of youth and is in the midst of following their dreams for the golden years.

Then unexpectedly your world shrank and your dreams were shattered by a disease called Alzheimer’s. Friends slowly faded away and your focus became narrrower and narrower. You found yourself in a new role of supporting someone who once was strong. One long day followed another as both of you adjusted. Sometimes you gave up hobbies and activities. Sometimes happiness was replaced with doubt, loneliness, heartache and confusion. Many days you answered the same question over and over.

You eventually made adjustments. You discovered your strengths you didn’t even know you had. You poured love out knowing the person you loved could feel it, but didn’t have much left to express their love to you. A smile or twinkle in their eye was enough on the rare days this occurred.

I know men and women who gave of themselves for years to their spouses. I am one of those children who had to become the caregiver of my parents even when they no longer recognized me as their child. Then the day comes that you say goodbye. Tears flow and hearts break. The life we have known ends and we are left picking up the pieces of our heart and trying to move on. Clothes and possessions have to be collected and dealt with. Small things trigger the waterfall of emotions. For me, I was cleaning out of my parents house . A guest room had a small bowl of potporri. As I poured it into a trash bag the scent of mulberry overwhelmed me. Mom’s favorite scent hit me hard. My husband came looking for me and held me as I sat down and cried. There is a season of readjusting.

Instead of being a senior in school you are a senior in life. You are dumbfounded in trying to process who am I now and where do I go from here. Finding your new role is not always easy. Take your time and pray about your next steps. Explore nature. Reconnect with friends. Try a new hobby.

Perhaps, a wiser and more mature you still has lots to offer to the younger generation. I thank you for the tremendous and valient effort you put into being a caregiver. You are worthy of being recognized as a hero. Only God knows your heart and only God can heal your pain. You will hear the words “well done my good and faithful servant” one day. While waiting, accept my virtual hug.

We will always remember the years of caregiving and the friends we made along the way. Much like climbers on Mount Everest, we struggled, we became stronger and have earned a rest.

Word for Today

Isaiah 49:13

Shout for joy, you heavens; rejoice, you earth; burst into song, you mountains! For the Lord comforts his people and will have compassion on his afflicted ones.

Song for Today

Prayer for Today

Dear God,

I thank you for the strength, compassion, and tender mercy you poured into my life during the caregiving years. Day by day you gave me the determination to be the best caregiver I could. You comforted me when the days were hard.

Today I ask that you give me opportunites to encourage caregivers around me. Remind them that they are loved and not alone.

Amen

Shifting Tides

When you can’t change the direction of the wind — adjust your sails

H. Jackson Brown, Jr.

When I began this blog, I was in the midst of an incredible journey that tested me like no other. The winds blew in storms as I stood on shifting sand. The lightning strikes had names such as Alzheimer’s Disease, vascular dementia and cancer. Thunder rumbled in the distance whispering “this is more than you can bear”. A choice had to be made. I couldn’t control the storm, but I could change my reaction.

The storms finally abated leaving emptiness as I tried to process the heart wrenching pain.

You have walked with me as I shared part of my story. Most of it will only be known by my wonderful husband and closet friends. I have been open and honest. Writing has allowed me to work through grief and consider how all of the shifting sand made me stronger.

I stepped away from writing for a bit to enjoy life again. My decisions of what to do will be shared later in this post.

On our farm spring is a busy season. Nineteen acres abounds with wild blackberries, privet, weeds, fireants, snakes and opportunities to transform that chaos into lovely raised beds full of chard, lettuce, carrots, kale, herbs and garlic. We even used the chain saw and rediscovered our overgrown barn on the far corner near the woods.

The labor has been intense, but we know how rewarding it will be to enjoy the fruits of our labor. Only one grocey store sells chard. Can you believe even the farmers market doesn’t sell it? I am truly a southern girl, however my palette for greens is not limited to turnip greens and lettuce. I even saute lambs quarters and throw dandelions into salads.

A trip to the bay was enjoyed immensely. We set crab traps, fished and watched dolphins. On a whim, we stayed an extra week. It felt amazing not having to find someone to be on call if a parent had an emergency. That freedom helped me realize my role as caregiver had truly limited vacations and travel. Guilt tried to creep in as I reflected over the peace I now have. The tides have shifted and I am content knowing I have no regrets over the caregiving years.

As a seasoned caregiver, I can assure you that your hard work as a caregiver will be rewarded by small moments such as a shared laugh or hug when you know you have connected. I can assure you that you will survive. I can assure you that God walks with you. I can assure that life will change as you move on.

I am better equipped to offer encouragement, advice, comfort and education to others on the path of caregiving because of what I have experienced first hand. I have spent sleepless nights struggling with decisions or answering phone calls in the wee hours of the morning. I have answered the same question over and over and over again. I have watched a loved one cry out in pain when they can no longer tell you where they hurt. I have cried so many tears that I was numb by the time God called my parents, in-laws and cherished aunts and uncles home. I have been punched, hit and cursed at by a disease that robbed me of a loving parent. I get the demands and challenges you face.

My next adventure is beginning. I will be renaming this blog and will let you know when this happens. A pod cast featuring guests is in the beginning stages and two book ideas are in my head waiting to be on paper. I will continue to lead a local support group and am considering a google meet support group. This is the way my loved ones will live on in my heart and be honored. They instilled a faith in God in me and modeled a life of compassion, generousity, resilence and love that I now want to share.

I hope that each of you realize that you are amazing. You are able to meet the demands of caregiving. You didn’t seek this job. No one would. You aren’t perfect. Neither am I. Together we can encourage each other.

It is with excitement that I ask you to join me on my new adventures. You could be my guest as the podcast launches. You may want to join the google meet group. Leave comments if you would like to be a part of these.

Word for Today

Psalm 4:8

In peace I will lie down and sleep, for you alone, Lord, make me dwell in safety.

Song for Today

Prayer for Today

Dear God,

I come to you with a grateful heart. You walked with me each moment as a caregiver. You spoke into my heart in the darkest moments when I felt helpless and afraid. I ask now that you do the same for caregivers aroound me. Reassure them that you have equipped them for the task. Let peace reign in their hearts and home.

Amen