Storm Preperations Have Begun

When you live in the south the word snow bring excitement. The word ice bring panic. We are hearing both words and live on the dividing line. Ice means downed power lines and trees are abundant on the farm and the roads leading to our farm. We are heeding the warnings and preparing for the developing storm.

Laundry is being processed, soups are being cooked and bread is being baked in case of a power outage. Thankfully, we have gas logs and solar backup batteries ready. Outside we are building a sheep shelter, moving the grill to a sheltered area, placing hay near the sheep and making sure the dogs have a safe shelter. These ice storms are rare but dangerous.

When you find out a loved one has Alzheimer’s disease, this is a storm warning. You should begin preparing yourself and your home before the storm hits. This may sound absurd considering absurd mean wildly unreasonable, and illogical. Your heart will not allow you to face the harsh reality that life as you have known it is about to be shaken and rocked in ways you can not imagine.

It would be unkind and uncaring for me to not make you aware of what the future may hold. Just as I am preparing for the snow and ice storm heading my direction, I planned for changes as my mom began living with Alzheimer’s disease. My dad was her primary caregiver, but should he have passed away first, I was next in line. This meant researching in home caregivers, assisted living facilities and physicians should I have to relocate mom to me. I lived with plans a, b and c in place. A suitcase was always packed and ready to go if dad called for help.

I traveled back and forth from my home to theirs for several years. These trips allowed me to be there for physician appointments and to evaluate how the disease was progressing. They also gave my dad a break. Each trip waas heartbreaking on the drive home. I would be making mental notes on what I had experienced.

Eventually, we had to hire in home help. Then move to a memory care assisted living. Dad began to lose cognitive judgment and executive order skills. We moved mom to a skilled care facilty. In the last few months both parents moved to nearby facilities near me. Dad could walk from his assisted living to mom’s skilled care through a covered and enclosed walkway. I could be there as often as possible, which was usually about 5 times a week.

All of the decisions about moves and care plans had been in place before we needed them. We were on waiting lists knowing we could say no if we weren’t ready yet.

To be able to make these decisions, you have to research, observe changes, ask questions. Seek out an elder care lawyer for wills, power of attorney, trust, etc. Have hippa forms signed, make decisions on DNR orders, decide how to handle feeding tube decisions. Then gather family and friends to be backup support when needed. Trust me on this one. You will need support!

We started this blog discussing our stormy weather ahead. My husband and our neighbor are working together to prep for this storm. Life has taught us to accept and offer help. Caregiving has taught us that the load is lighter when we share it.

The word Alzheimer’s is one you will hear someday in your family or friend group.

Over 7 million Americans are currently living with Alzheimer’s disease, and this number is

projected to rise to nearly 13 million by 2050.

Now is the time to prepare for hearing those words. Instead of living in fear, live prepared. Find a seminar or support group and educate yourself.

Word for Today

Psalm 4:8

In peace I will lie down and sleep, for you alone, Lord, make me dwell in safety.

Song for Today

Prayer for Today

Dear God,

Life is full of storms that we must face. I trust in you to guide my steps as I prepare to face the storms. Give me your peace as th storm rages. Give me hope that you are in the storm with me.

Amen

Most Critical Mistakes I Made as a Caregiver

Caregiving is usually full of lessons to learn the hard way. Each and every caregiver I know can share their own stories of what they learned. I will share a few today from my own experience.

Communication is vital even when others do not understand or agree. I should have talked to my mom about her concerns and fears early on. My heart and emotions were reeling and I was afraid to. She had always been responsible and hid her own emotions well. This made it hard to know how she was processing information. Knowing how important it is to show empathy, I should have taken her hand and acknowleged that I was scared and sad too. Even if she did not vocalize her feelings, I could have let her know I was with her and understood.

I would have tried harder to help my dad understand how his own behavior would have to change. When you care for someone with Alzheimer’s disease what works one day may not work the next. We cannot argue and try to reason with them. Their reality and ours may be very different, but we have to move into theirs to be effective.

I would understand the behavior changes due to pain and fight placing her in a geri-psych unit without treating the pain first. We had a terrible experience when we placed mom in a memory care unit. They called about four days later and told me she was out of control and I had to take her to the hospital. She was angry anad aggressive which was totally not the person I knew.

It was late in the evening and the nurse was waiting on us. They took her straight into the emergency exam room. I called for someone to come and take dad home. When I came back into the room, they were testing for a uti infection. It was positive. The nurse lifted my mom’s top and saw red. I watched in horror as they removed her bra and she cried in pain. A nasty yeast infection was under her breast. The nurse saw my shock and asked where mom had been living. I told her and saw her spring into action to calm mom and immediately bring a physician in. I would not want to have been the person from the facility that answered the call when I heard his reprimanding.

I allowed mom to be admitted into the geri-psych unit because that is what they suggested. Today, I would have asked for a regular room for a couple of days to treat the uti and yeast infection. I would have stayed with her 24/7 and evaluated the anger and aggression. Then agreed to the other if behavior was still an issue. This was a hard lesson learned!

These units are necessary. The medications used do not always work. They try one and then another. This process sped the loss of skills and my mom never regained them. She had walked in and was talking well. We came out in a wheelchair and speaking fewer words. I knew she was overmedicated and began talking to her physician. He and I together decided to move mom to a skilled care facility where their medical director could ease her off of some of the meds.

These lessons are shared not to scare you, but to help you understand it is not easy to always know what to do. My mom would have lost those skills anyway as the disease progressed.

Caregiver stress is real. My dad was showing signs of poor judgment and decision making as mom’s disease progressed. I should have monitored finances earlier than I did. Someone not in the family had been talking dad out of quite a bit of money. He had always been a generous and kind man, so she took advantage of that. It was elder abuse. My brother and I confronted dad with the bank records and ended the situation thankfully.

We actually dealt with one parent with Alzheimer’s disease, one with mini strokes, one with cancer and another with what we thought was vascular dementia. When my mother-in-law was diagnosed with vascular dementia, I accepted that. As time passed it, I questioned the diagnosis and her physician had moved. Strange and stranger behaviors were happening. There were days that she came across as her normal self and others full of delusions and hallucinations. After her death, I found that one of the most unusual behaviors had a name, Capgas syndrone.

It is a rare psychological condition where an individual believes that a loved one has been replaced by an identical imposter. She would tell us her husband had been there. If someone reminded her that he was deceased, she would say “you know what I mean, it was the other him”. One day during a visit, she insisted that we were not the real us. We looked, sounded and acted like the real us but we were not the real us.

All the the above led me to believe that she actucally had Lewy Bodies which is often misdiagnosed. I would have tried harder to find her true diagnosis. It would not have changed how we cared for her, but it would have helped other family members understand what she was facing and helped them accept what we were dealing with.

My mistakes allowed me to learn to observe more, be patient, be diligent and remain humble. Trusting God to strength me and give me wisdom and grace got me through.

Word for Today

Philippians 2:14-16 (New International Version

Do everything without grumbling or arguing, so that you may become blameless and pure, “children of God without fault in a warped and crooked generation.” Then you will shine among them like stars in the sky as you hold firmly to the word of life. And then I will be able to boast on the day of Christ that I did not run or labor in vain.

Song for Today

Prayer for Today

Dear Heavenly Father,

Thank you for your amazing love and grace. You are where I run when I feel regret over my mistakes. You hold me in your arms and comfort me when I walk in pain. You pick me up and steady me to keep going.

Amen

It has been 10 years

Today I dedicate this post to my beautiful mom.

Dear Momma,

If you could see my heart, you would see little stitches sewn by God as he heals the gaping hole you left when you passed ten years ago. Every ounce of me wanted to take the horrible disease called Alzheimer’s from you. I coudn’t, so I decided to learn everything I could about how to help you and make you feel loved and cared for.

Little things remind me of you all the time. When I received red roses for my anniversary this month, I remembered how much you enjoyed them when Dad bought them for you. When I savor grapes, I remember how much you loved them. Wearing pieces of your jewelry makes me feel joy. An unfinished jigsaw puzzle sits on my dining room table. Actually, it is your dining room table we used to sit at together.

Don’t feel bad about me taking care of you. Those years are treasures for me. I saw little glimpses of all that you are. The inhibitions disappeared and I saw a fun woman giggling and humming. It was a side of you that you had hidden away to be a responsible and mature adult.

I watched a woman who was secretly called the sugar police by her sisters devour cookies, ice cream and desserts. It felt freeing to see you were more normal than we had thought.

I learned to love my family deeply from you. I learned to make sacrifices for others from you. I learned to clean from you, but it didn’t make me a total neat freak like you were.

You took phone calls at home from confused older customers at the bank. You gave children a ride to church. You rocked babies in the church nursery. You shared food from your garden. You would go to the nursing home to feed my grandfather when he wouldn’t eat for anyone else. You drove through the night to be there for my toddler while I was in the hospital with her baby brother. You even picked cotton by hand to buy fabric for my new clothes when I started to school. The wonderful memories of you are flooding over me now.

Your family has grown a bit since you were here. With my brother having six children, we have had a few weddings and a few more babies. Liz wore your ring at her wedding. She asked for a photo of you and dad to display. I chose a photo without noticing that you had that very ring on. We both teared up when we realized it. You have two amazing great-grandsons now. What a reunion we will have one day!

It was an incredible honor to walk on one side and have dad on the other as we walked you toward your final home. You and dad made me a better person. I love you so deeply and am looking forward to joining you in heaven when my life here is over. Give dad a hug and ask him to give you one for me.

Love,

Your daughter

My letter was how I chose to journal today. Journaling is one of the many ways I learned to cope. Realizing that being in the moment with my mom where she was in her mind at the time made taking care of her much easier. The years spent taking care of her long distance and in her home were difficult. Many lessons were learned about God’s incredible grace and strength. Moving mom to skilled care was heartwrenching, but dad visited daily and I did once she moved closer to me during her final days.

I cannot count the tears that rolling down my cheeks as a caregiver. I shed tears writing this post. Comfort was always found in knowing that God saw those tears. When Jesus came to his friend Lazarus’s tomb, he wept. If Jesus wept, then it is perfectly fine for us to weep as well.

You will find your own ways to cope. You will grow and stretch. In the end, you will be stronger than you ever thought possible. Keep giving it your best my friends!

Word for Today

honor your father and mother, and love your neighbor as yourself.

Matthew 19:19

Song for Today

Prayer for Today

Dear God,

I praise you for the time I had on earth with my wonderful mom. Thank you for walking with me each step of the way. You held me when I was broken. You comforted me when I was scared. You gave me strength to do things I never knew I was capable of doing.

I ask today that you do the same for anyone reading this. Pour unexpected blessings into their life. Send friends to share the load they carry. Give them peace at night to rest.

Amen

Merry Christmas!

Two posts for one today. I just wanted to add this post before the end of the year. This is a time I have set aside to celebrate the birth of Christ and the upcoming anniversary with my husband. My mind is racing with what the future holds.

We were so young when we began this journey of life together. Reflecting over the years we realize there have been too many times we put things off until later. At our age, later is here. Leading a caregiver support group means hearing a lot of stories that ring true for us. Too many of my caregivers talk about the plans for their retirement years that unraveled due to Alzheimer’s invading their life.

We are choosing to do a few of the things we enjoy that we can afford to do.

slow down and enjoy sunsets
sit by the firepit and watch meteor showers
fish on a pretty day
garden
tend our sheep
visit with our friends
take a drive in the country
volunteer
eat when hungry….sleep when tired

You get the idea. We have a lower income now so we are learning to be content with what we have. All of us look ahead and face a question. How long do we have? Make the most of your time.

Caregivers have an uncertain future with their spouse. My dad learned to put my mom’s makeup on. Another man I know bought his wife who was in the late stage of Alzheimer’s a doll. Every night he tucked the “baby” in after she kissed him goodnight. Your love for each other will not die. You just learn to express it in a different way.

Sometimes the unexpected changes hold hidden blessings. Look for your blessings.

Word for Today

Proverbs 3:5-6

Trust in the Lord with all your heart and lean not on your own understanding; in all your ways submit to him, and he will make your paths straight.

Song For Today

Prayer for Today

Dear God,

We are so blessed by you. We praise you for the many blessings you have given us.

Amen

Grief Triggers During the Holidays

I am sitting here by my Christmas tree thinking about family that has gone ahead of me to heaven or those who live miles away. The ornaments hold stories. The first Christmas with each of my children and the ones made by my children and grandchildren have their own section. It is in the back corner of the tree where only my hubby and I know they hang there reminding us of them. There are spun glass hearts and angels that once hung on my mom and aunts trees. Glass humingbirds remind me of my in laws and their love of hummingbirds. There is a long nail spike to remind us of the price Jesus paid for us.

A smaller tree is in the den. It has Alabama football ornaments from a tree we gave my dad in his assisted living facility. We had put it up the first game of the season and grandchilren sent ornaments. We added one after each win. The staff came to talk to him and tease him if they were fans of another team. I can see his smile now as I recall how happy this made him.

On my porch there are wood block pieces from a nativity set my children made when they were young. I only have a few blocks left, but I display them.

Deciding on which cookies to make always reminds me of the ones our grandparents and parents made. Mom made hello dollies. Granny made sand cookies. Ma made an incredible pound cake.

All senses are engaged during Christmas. Seeing and touching decorations can cause your mind to zero in on your missing family members. Hearing a certain Christmas song may bring tears to your eyes. Smells such as cinnamon can transport you to a kitchen from your past. You can almost taste gingerbread without taking a bite.

Grief can hit you with gale force winds at the most unexpected times. I was sorting, discarding and packing up items in my parent’s home. It was going well and I was excited to be making great progress. I picked up a bowl full of potpourri and noticed how dusty it was. I turned to pour it into a nearby trash container.

The aroma of my mom’s favorite scent overwhelmed me. A tear formed and I dropped down on my knees sobbing. My husband found me and rushed in to see if I was alright. Sobbing uncontrollably is very rare for me. I had not allowed myself to truly grieve the loss of mom because my dad had needed me to be strong. It was as if a dam broke when that familiar smell filled the room.

Allowing myself to grieve was healing in many ways. When the tears ceased I was able to thank God for giving me parents that were amazing. Our shared love did not end when I lost them. It gave me an uncredible foundation to keep building my life on.

Three years ago my mother-in-law passed away on December 22. We were exhausted from a hospital stay and move to a nursing home. Calling family, making funeral arrangements, and sleeping consumed our next couple of days. Christmas came and went with neither of us remembering what we did on Christmas Day.

This year we have decided to face the triggers of grief by remembering the good things and keeping our focus on the present. We have decorated, baked cookies and shared meals with friends. Our plans for Christmas morning are quite different this year. We have plans to visit residents at a local assisted living facility. After reading the Christmas story we will sing a few carols and move on to fun songs. Boxes of red reindeer noses, jingle bell necklaces and soft plush snowballs will add to the joy. These activites will be adjusted to keep it a controlled fun to avoid over stimulation!

We made a choice to share hugs and love with those who may need it the most. Wishing you a Christmas filled with love and comfort when grief is triggered.

Word for the Day

Luke 2:9-11

An angel of the Lord appeared to them, and the glory of the Lord shone around them, and they were terrified. But the angel said to them, “Do not be afraid. I bring you good news that will cause great joy for all the people. Today in the town of David a Savior has been born to you; he is the Messiah, the Lord.

Song for the Day

Prayer for Today

Dear Heavenly Father

I am so thankful for your healing power over my broken heart. This Christmas season I know memories will flood my mind and grief may be triggered. I trust you to help me live in the moment celebrating the birth of Jesus. Let your joy fill the tender holes in my heart when grief does rise up. I am trusting you through all seasons.

Amen

Laughter Lightens the Load

Caregiving comes with tears. Before you drown in those tears, take a few minutes to reflect on the times you had to laugh.

Have you ever received a phone call from a parent telling you that their phone is not working?

Dad “I just called to tell you my phone isn’t working”

Me “Whose phone are you using now?”

Dad “Mine.”

A caregiver called one day to tell me my mom was having a yard sale. I asked how she knew this and was informed that mom had been throwing things into a closet all week for the sale. I asked about which closet and realized it was not a closet. It was a rear staircase that led to their garage. When I checked it, the entire staircase was full!

A friend left a large cup in her car with her dad. Later that day when she retrieved the cup, it was full of urine. Her dad had used it while she ran into a business. When asked about it, he informed her that a strange man hopped into the car, used her cup and left.

Another caregiver I know left his wife in the kitchen. When he returned he entered an “I Love Lucy” episode. She had poured liquid detergent into the dishwasher and turned it own. Bubbles were everywhere.

Some dementia patients have a lingered guilty conscience they have to clear. An 86 year old woman pulled me aside one day and insisted she had something she had to tell me. She led me to a corner and lowered her voice. She once again insisted I had to hear this. I calmly told her she could tell me. She leaned in and lowered her voice. I then listened as she informed me that she had a thing going on with my husband. It was very difficult to control my laughter as I thanked her for telling me. I approached the facility director with this information. She laughed and said the woman had a thing with her husband and most of the employees’s husbands.

Sometimes you can’t truly laugh until later, but you will have things to amuse you on this journey.

Humor is a gift. God gave us emotions and reassured us that they will change…

a time to weep and a time to laugh,
a time to mourn and a time to dance,

I wept. I laughed. I mourned and am still learning to dance.

A new rhythm is emerging as I assist others on their journey of caregiving. I still weep when they weep. I still laugh when they are able to laugh. I wrap my arms around them when they mourn. I am now able to walk away and focus on looking forward and making memories in the moment during our retirement years. Maybe the days on our farm playing with dogs and tending sheep will bring joyful dancing.

Just remember the emotional ups and downs are temporary. Don’t hold back the emotions. They may explode at the wrong time and place if you don’t release them when you can. Step away when angry for a few moments to regroup. Laugh privately at the funny moments and with a person when they see the humor too. Never make them feel as if you are laughing at them.

Just this morning a friend who is a caregiver sent me a funny text that had brightened her day. I was thankful that she is taking time to do this for herself.

Go ahead and smile as you read the quotes below.

“My job has made me a pro at finding things I didn’t lose.”

“Leftovers? I prefer to call them ‘meal prep for the next week’.”

“I argued with Mom for a half-hour to wear matching socks only to discover I went shopping with my shirt inside out.“

All of you could add your own moments of humor. Go ahead and comment me with yours so I can laugh with you.

Word for Today

Psalm 126:2

Our mouths were filled with laughter, our tongues with songs of joy. Then it was said among the nations, “The Lord has done great things for them.”

Song for Today

Prayer for Today

Dear God,

I am so thankful that you understand the many emotions that I am experiencing as a caregiver. Sometimes I struggle with these emotions but I know you stablize me and encourage me through all of them. Help me to find my joy in you.

Amen

I’ve Got That JOY JOY JOY down in my heart!

Enjoyment can be defined as the process of taking pleasure. I have pondered this a bit while being a young mother, a wife, a caregiver and then an older person who is no longer needed as a caregiver. During the stages of life, I have taken pleasure in many things. The circumstances around me have forced me to find new ways to find enjoyment.

If you are in a season of caregiving, you may have days you longed for something to enjoy. Maybe you have had to give up golf, tennis, travel or other activities. This is when you have to find new things to do together that both of you enjoy. Perhaps watching videos about travel is something you can enjoy. We do this because our budget as retirees limits us on travel plans. We have learned to enjoy and explore local places. Take a drive this fall and enjoy the color and cooler air. An apple orchard is always great for an apple cider. If you and the one you care for are mobile, rake leaves. Make sure to snap pics to record your memories.

My mom loved working crossword puzzles. We went to simpler puzzles with larger pieces when she could no longer work her old ones. Sitting there was not enjoyable at first. Seeing how content she was made just being with her enjoyable. When volunteering at a memory care unit, I found just watching the beautiful faces light up when we played games made it very enjoyable for me. It reminded me of watching a child learn to read. The sparkle in their eyes warms your heart.

You will make sacrifices during the entire time you are a caregiver. Keep looking and you will find ways to find joy in new things. After my mom passed away, my dad was lonely. He had given up a lot and was showing signs of cognitive decline. He found great enjoyment watching Alabama Girl’s softball and Alabama football. To be with dad, I would drive over and settle in to watch softball games and tournaments. Eventually, I got interested in the games as well.

The true source of my joy is God.

Romans 15:13

May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit.

Some days were extremely difficult as a caregiver and losing my parents. My husband and I did what we could for our parents. There is a scripture that I believe is true for my life.

“Honor your father and mother”—which is the first commandment with a promise— “so that it may go well with you and that you may enjoy long life on the earth.” Ephesians 6:2-4

We are now in a new season as some of you are. You honored the ones in your life who needed you. Now it is time to rediscover things on this earth that you can enjoy.

I am enjoying the farm life. We just added sheep and these beautiful livestock guardian dogs to our animals. We now schedule our days around feeding animals, gathering eggs, and grinding wheat to bake bread. It is quite a change from living in a metro area for over twenty years.

It is a wonderful change. As a child I longed to live in a subdivision like my friends did. Now,I am very content with the sounds of nature such as waking up to the rooster crowing and birds singing, growing our own food, and breathing in fresh air. It has plenty of adventure as well. In the last week I have been shocked by a hot wired fence, searched for a lost ewe who fell into a hole and herded sheep to a new area of the pasture. I had joked that as youth pastors we had herded teens. Sheep had to be easier… not true!

I share today to reassure you that new sources of joy can be found.

Helpful hint for October:

Halloween can be very nerve wracking for someone with dementia. Do not make the mistake of thinking someone loves children so they will love Halloween. The disturbance of the constant doorbell ringing will be startling. Seeing masked and costumed people can be frightening. Try to make plans for a quiet and sheltered evening.

I once advised a woman that taking her mother to a party at Chuck E Cheese for her great grandchildren was not a good idea. She ignored me and did it anyway. Her mother was frantic when they returned her to her assisted living facility. She even tried to jump out of a moving car. The poor woman was way too over stimulated and terrified by the characters and noise. Please realize that a person with dementia cannot process loud and active situations like you do.

Word for Today

Psalm 16:11

You make known to me the path of life; you will fill me with joy in your presence, with eternal pleasures at your right hand.

Song for Today

Prayer for Today

Dear God,

I thank you that you can give me contentment in whatever situation I find myself in. Sometimes it is a struggle as you know. I want to find my joy in you and trust you to open my eyes to the things you have given me to enjoy. Forgive me when I long for things I have had to sacrifice to be a caregiver.

I will praise you because the joy of the Lord is my strength.

Amen

Life With a Diminished Brain

Today I read a prompt to write about what life without a computer would be like. Immediately, I thought about what life would be like without a fully functioning brain. If I had no computer, I could find a work around. As a child I researched by reading real books. I wrote with pen and paper. Truly, being without a computer would simply be a huge inconvenience.

Trying to live my life with a diminished or diseased brain is extremely frightening. Just imagine losing your ability to control your own life day by day, then year by year. The lose of dignity and independence would feel as if you were in a small room with the walls and ceiling closing in on you. Eventually, you would be lying in a bed breathing shallowly as you waited for your last breath.

I watched my mom do just this. She lived a full life before Alzheimer’s disease began to steal her abilities to continue to be a loving person dedicated to her family. A loving family, successful career, beautiful home and amazing marriage had been dreams fulfilled. If a painting by a master artist could have portrayed her life it would have been a treasured masterpiece. No one would have allowed it to be hung where the sun could cause it to fade away.

Then this horrific disease, Alzheimer’s, caused her memories to fade We were left straining to hold on to all we could about her laugh, her smirk of a smile, her little love pats she gave the grandchildren and even her fear of mice. Many days I long to just hear her voice.

I know that she loved God and that he was her comfort in her final years. Hymns playing in her room brought peace. When we prayed, she would squeeze my hand. Even though she didn’t recognize me as her daughter, she knew we belonged together.

Perhaps every child of a parent with Alzheimer’s disease has a little nagging thought of getting this disease. I know that I do. Just last night I was in a booth with other volunteers for our city’s First Friday event. We were distributing pamplets about Alzheimer’s and related dementias. We were letting people know about our upcoming symposium for caregivers. Each of our group is experienced personally and professionaly with the burden caregivers carry.

We had a few people stop and talk. We had many slow down, look over our materials and quickly turn away. We watched as spouses walked past guiding their husband or wife through the crowd. At the end of the evening, all of us knew that many who had passed our booth are already showing signs of cognitive decline. This made me even more aware of how prevalent it is.

That nagging fear of knowing that could be me sometime tried to surface. I refuse to live my life controlled by this fear. I want to live a full life engaging with friends and family as often as I can.

I choose to exercise my body and mind while making healthy food choices. I choose to trust God with my future. The following scripture is my verse I choose to stand in faith on.

Isaiah 46:4

I will be your God throughout your lifetime— until your hair is white with age. I made you, and I will care for you. I will carry you along and save you.

My soul will be saved when my body fades whether that is mentally or physically. None of us live forever on this earth. When we face trouble and suffering, we often complain that life is not fair. Only God sees the complete picture. We have to trust that his plan is for our best.

Word for Today

For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind. 2 Timothy 1:7

Song for Today

Prayer for Today

Dear God,

You amaze me when I watch you order my steps and give me peace of mind when those steps are challenging. I trust in you when fear tries to come in. I know that you have an army of angels that surround me. The trials here do not compare to the glory I will see one day when I stand at your feet and you open my eyes to your plan. Give me strength and hope as I trust in you.

Amen

Lewy Body Is Different

Alzheimer’s disease has many early signs such as memory issues. The mental cognition has a slow decline over time. Lewy Body is not so predictable. I experienced this first hand. My mother had Alzheimer’s disease. We thought that my mother-in-law had vascular dementia and no one tested for Lewy Body disease. As I educate myself about LBD, I tend to lean heavily to the thought that she had it.

Lewy Body Disease (LBD) is a progressive briain disorder. Alpha-synuclein is a protein found in the brain. When these clump together it is known as Lewy bodies. Cells normal function is interrupted resulting in cognitive decline, hallucinations, delusions, sleep disturbances and motor issues.

I saw signs of cognitive issues but they were vastly different than Alzheimer’s. Her memory was pretty much intact. She would appear perfectly normal one day and confused the next. Her essential tremors ramped up. Most of the families members did not see symptoms in the early stage.

She would insist that someone had told her they would take her shopping and be upset when they did not show up. She would attempt to bake a cake and leave the flour out. She developed paranoia. She loved football and watching her favorite team. She would cheer over a play and then cheer again over the replay or go to the kitchen and never return to finish watching the game.

Then when her spouse passed away things escalated quickly. A huge delusion caused us to have to move her to an assisted living facility. Once there she often called to give me detailed accounts of visitors who were never there. Her hallucinations were described in full living color. She would be very convincing in her stories.

We experienced capgas syndrome. This is a psychiatric disorder where she held a delusion that we had been replaced with imposters. We would go visit and she would tell us who we were supposed to be but we were not real. We were imposters who looked, acted and sounded like us. Try explaining that one! Some day the chef or nurse were imposters as well.

A bouquet of flowers brought her joy. One day a lion was in the flowers. The next day monkeys were in the flowers. When I went to visit, a dancing lady was in the flowers. Before we all got stressed out, I decided the flowers were wilting and needed to be disposed of. A nurse smiled as I deposited them into the trash. Apparently she had be informed of the busy bouquet.

Falls became more common.

She became less social.

The whole experience was very different than the one with my mom. I truly wish I had known more while my mother-in- law was alive. We did the best we could.

I highly recommend a book if you suspect your loved one may have LBD.

Living with Lewy’s by AmyJ Throop and Gerald S Throop. It opened my eyes to many things. Hopefully, you can get information that helps you. Don’t give up when seeking a physician that can give you a diagnosis other than mild cognitive decline.

Don’t give up. You are learning and improving as a caregiver each day.

Word for Today

Proverbs 2:6

For the Lord grants wisdom! From his mouth come knowledge and understanding.

Song for Today

Prayer for Today

Dear God,

I thank you that I can rest in you on the days that are hard. Give me wisdom as I help my loved one struggling with reality. Give me courage. Give me strength to trust you.

Amen

Amazing Caregivers

It is a joy to be able to interact with amazing caregivers. They can be young, old and in betweeen. Their time is given freely or they may be paid. The amount of pay is usually not why the job is accepted. It is accepted because they have beauitful caring hearts.

When I ask a man I know how things are going, he almost always responds with a smile. He loves his wife dearly. As the conversation lasts a little longer. He admits that today his wife knew him but on many days she doesn’t. Her lastest thing is to move and hide things so he is always searching for misplaced items.

This morning I spoke with a paid cargiver. She said that during the night the woman she takes care of awoke and cried out because her room was on fire. The caregiver looked around and realized the glowing face of a clock had set off the panic. She turned the clock and reassured her. The lady then asked her to please lay down by her side. With a smile she did just that and the other one fell fast asleep.

I am a part of an organization that has a board consisting of several people who are employed as nurses, social workers, and nursing home administrators. Often I overhear how they have bought food for a family, picked up prescriptions for someone, allowed a visit to turn into much more as they changed a person and helped bath them while there. This world is full of people that know how to love and show love to families that need them.

If you are reading this and feeling like a forgotten person who is overloaded, I get it. Too many times you must bear way more than a light load. You are amazing as well. This job is never easy. There are few rewards other than knowing you are doing your best under trying circumstances. Please know that God is with you. He can give you wisdom, courage and strength to continue to be amazing. He amazes us and enables us to amaze our loved with with compassion and tenderness on the most demanding days.

My applause goes to you amazing caregiver!

Word for Today

Galatians 6:4

Pay careful attention to your own work, for then you will get the satisfaction of a job well done, and you won’t need to compare yourself to anyone else.

Song for Today

Prayer for Today

Dear God,

Shape me and mold me into a better person. Give me compassion and shower my soul with love that you pour into me so I can pass it on to those you have placed in my care.

Amen