Caregiver Overload

Athletes train for years to be able to lift heavy weights. They watch their diet and are disciplined. Their physical strength is amazing. They have a goal in sight and strive to accomplish it.

Caregivers often are blindsided with a heavy load to bear. There have been no times of intense training to prepare them for their task at hand. Their only dream is to provide the best care they can. They feel as if they were run over by a fast moving train with little or no warning.

A lack of knowledge about dementia may lead them to overestimate the patient’s abilities.

The reality is that when the hard truths reveal themselves you realize just how much is expected of you. There is a book entitled The 36 Hour Day. Caregivers pack 36 hours worth of tasks into a normal 24 hour day. Caregiving overload can occur. This results with the caregiver being in a state of physical, mental, emotional, and spiritual exhaustion. The demands of caregiving exceed the caregiver’s capacity to cope effectvely.

Some common signs are as follows:

Physical – chronic fatique, disturbed sleep, headaches, weight changes, and lowered immunities

Mental and Emotional – Depression, Anxiety, Loneliness, Guilt, Irritability, Anger, Sadness

When you are so focused on taking care of someone else, you neglect your own needs. Sacrifices will be made, but you need to take care of your own needs such as medical appointments.

I had been taking care of my parents and handled their doctor visits and filling out their forms for many years. I went to a physician for myself soon after my last parent had passed away. The receptionist handed me a new patient form. Out of habit I started checking boxes of everything that was wrong with my parents on their visits. About half way through the list, I laughed at myself and went to get a new form. What would their reaction have been if I had diabetes, Alzheimer’s disease, high blood pressure, urinary incontinence, a heart murmur, swallow issues, a replaced knee and mobility issues?

Yes, caregiving had been a little stressful. There were many times I felt the fatique and frustration. I sometimes wished I was a well trained athelete. That would have made running easier when I felt like a hamster on a wheel.

Today I talked with a caregiver who is older than me. Her spouse has Parkinson’s disease with dementia. She has a heart condition herself. A couple of years ago, she collapsed in the floor from pure exhaustion. Her husband started shaking and crying. Her daughter walked in and rushed her to the hospital. Someone had to be called to stay with her husband while she was at the emergency room. No one wants to end up in that situation.

Sometimes we can lighten the overload by asking for help. Finances can become strained and you simply cannot pay someone to help. I encourge you to look into the GUIDE program with medicare. This funding enables you to hire in home assistance. Check with government agencies in your area. Contact the veterans agency if this applies for you.

In the past many families shared the load of caregiving. Extended families live far apart today. The whole family can adjust to provide the primary caregiver a short time of respite. Communicating your need without trying to place a guilt trip can be tricky. Provide them will some ideas of how they can help. Even teenage grandchildren can become involved. They can pay for services to help you and your loved one survive.

Here are a few suggestions.

Order and pay for a meal delivery

Pay for an in home caregiver 1 day a month

Come and be the caregiver for a weekend

Hire someone to clean every other week

Take the car to get an oil change

Hire someone for lawn care

Depending on your own social connections, you may have friends, church family or neighbors who would be willing to help you. Do not let pride or embarassment deter you from seeking help. Even the strongest people can begin to limp along when carrying a huge load.

When the symptoms of overload begin, reach out for help.

Don’t wait until you are sinking!

Word for Today

Psalm 68:19

Praise be to the Lord, to God our Savior, who daily bears our burdens.

Song for Today

Prayer for Today

Dear God,

Some days I struggle under this load of caregiving. I am tired and weary. I need a good night’s sleep. I make myself keep going because I am the only person my loved one has daily to meet their needs. I need you to bear my burdens today. Give me peace, comfort and meet each of our needs.

Amen

Our Good Shepherd

A week ago we came home from church, had lunch, changed clothes and went to check on our sheep. We use rotational grazing to keep the sheep on good grass. Usually, my husband opens an area and calls “sheep, sheep , here sheep”. They hear and know his voice. They run into the new paddock. This day two new mama sheep did not come running with their new babies. They are quite cautious and protective. He scooped up the nearest baby and placed her in my arms. I walked to the new paddock full of joy. Her mama followed me. The little one was tiny and damp. I looked across the flock and counted. At that moment I realized she had just been born. I quickly gave her over to her mama even if I so wanted to keep holding her.

In those few moments of holding her I had tears because she was beautiful. I felt honored to hold her safely until her mama caught up to us. Hours later I found myself pondering how often God has held me tenderly in his arms. How many times has God as my shepherd called out to me expecting me to know his voice. I have learned that when a mama calls out, their lamb sometimes is so busy playing that they ignore her call until they get hungry. Sometimes God calls out to us and we are too busy to run to him until we have urgents needs.

Caregivers are very busy. Sometimes we may not slow down and listen to God’s voice. When we do he protects us, comforts us and gives us directions on how to be the best caregivers. He was to hold us close when we are exhausted, lonely, overwhelmed and running on empty. Our many needs are urgent. Don’t put off running to God daily.

I tended to have day long coversations with God. A little bit here and a little bit there. He understood the schedule and was always waiting when I needed to talk.

Psalms 23 states the following

The Lord is my shepherd, I lack nothing.
    He makes me lie down in green pastures,
he leads me beside quiet waters,
    he refreshes my soul.
He guides me along the right paths
    for his name’s sake.
Even though I walk
    through the darkest valley,
I will fear no evil,
    for you are with me;
your rod and your staff,
    they comfort me.

You prepare a table before me
    in the presence of my enemies.
You anoint my head with oil;
    my cup overflows.
Surely your goodness and love will follow me
    all the days of my life,
and I will dwell in the house of the Lord
    forever

My personal experience showed me that there were times that no one else understood the demands of caregiving. Friends and family tried, but only God could see into my heart and know what I needed most. You may find yourself fearing that family and friends are tired of your stories and see you as a complainer. They slowly drift away leaving you crying and alone.

Even Jesus after coming to earth as a human, found himself alone. He asked friends to go with him to the garden to pray. They did not comprehend the heavy load he carried and fell asleep. He chose to forgive them and didn’t get upset. He simply prayed.

We have to forgive people and not harbor bitterness in our hearts when they fail to understand the load we carry.

Jesus felt pain. Jesus wept. Jesus died for our sins. He intercedes for you at the right hand of his father (God). He pleads your case because he understands your pain.

Listen to God’s voice and you will be comforted.

Run to God and be held as your tears flow.

Some people say that Jesus and Christianty are just a crutch. It is the best crutch I have ever found. God allowed me to hear his voice at a very young age. I look back over my life and see the times He was there over and over again. He has held me close when I needed him to and has been a light through dark times.

My walk has not been perfect. I have held to the verse below and will continue to until my last breath.

Word for Today

Trust in the Lord with all your heart
and lean not on your own understanding;
in all your ways submit to him,
and he will make your paths straight.

Proverbs 3:5-6

Song for Today

Prayer for Today

Dear Heavenly Father,

I come to you today knowing you are my good shepherd. Time and time you have met my needs, ordered my steps and given me hope. I praise you for all of this. I ask that you help me to stop and seek you when the world is spinning so fast. Calm my fears and give me strength. When the pain and fear overwhelm me, wrap me in your loving arms and give me the faith to trust you.

Amen

The Big Thing

A child is often asked “What do you want to be when you grow up?”. They are then encouraged to chase their dreams. Is what they do for an occupation as important as who they become as a person?

Be patient with me and you will understand how this pertains to caregivers. For far too long I have watched young people spend so much time waiting for God to give them something big to do that they miss the very things in front of their faces that God has for them to do. Some of these people continue to go through life for years chasing a big “dream” that never manifest itself.

History has shown us that God sometimes has a path for us to follow to prepare us for the “big” thing we are to do. David honed his skills while tending sheep, only to be summoned to be anointed as a king. A couple of fishermen stepped out of the boat to become disciples. Ruth was gleaming wheat when she married and bore a son who was in the linage of Christ. Sometimes God wants us to simply live a life that brings glory to Him. When this is our focus, He will show us what is big to him and how you are to do it.

In Matthew 25:40 we are told:
“The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.” When you become a caregiver what counts is who you are. Are you a person who can humbly show compassion, love, dedication, patience and emotional strength each and every day? I sure hope so because this is the “BIG” thing God placed in front of you to do.

When speaking at a symposium a few years ago, I looked into the eyes of caregivers and told them that if they didn’t feel a need for God in their lives, they would due to the trials of being a caregiver. I still feel this is so very true. God provides strength, courage and insight when they are needed. He has even ordered your steps to prepare you for this “big” thing.

I never imagined that I would one day be a caregiver for my parents. When those days arrived though, I could look back and see how God had placed me into positions that had prepared me. He has done the same for you. This time will allow you to stretch and grow into a better person. What matters is not what you did in the past, but who you are because of it.

Dig deep into your heart and ask God to show you how to carry out your tasks day by day. The little things done over and over have prepared you well. When things are difficult reflect back on how God guided you through the little things and move forward knowing he will be with you each and every day now just as he was then.

“We delight in the beauty of the butterfly, but rarely admit the changes it has gone through to achieve that beauty.”
Maya Angelou

You are being transformed into a beautiful caregiver. This is you “BIG” thing. Most likely you never dreamed of this as a child, but here you are. You can do this!

Word for Today

1 Peter 3:3-4

Your beauty should not come from outward adornment, such as elaborate hairstyles and the wearing of gold jewelry or fine clothes. Rather, it should be that of your inner self, the unfading beauty of a gentle and quiet spirit, which is of great worth in God’s sight.

Song for Today

Prayer for Today

Hello God,

I think I finally understand the your big thing for my life was a surprise. Here I am being asked to be a caregiver. This makes me realize that it is not a burden. It is an honor. Give me the ability to carry this task out with beauty and grace. Let me do this to bring you glory.

Amen

Hiding the Stress and Pain

Some of us carry pain and stress inside. Others see a smiling face and admire our strength, especially those in our church. They know our trust and strength are in God alone. We do have peace, but even those who have faith and strength hurt.

Yesterday I saw a woman hugging and smiling as she entered the sanctuary. When I asked how she was, I saw a tiny hole in the “everything is ok” mask. A few questions coming from a fellow caregiver opened that hole and I saw weariness, tiredness and pain.

God began to remind me of the many times someone had not only prayed for me but actually put their arms around me and gave me a safe place to let the raw emotions escape as tears. I approached her and did just that. She sobbed as I prayed.

I know her faith in God is solid. I know she has a beautiful heart and spirit. I walked in her shoes not too long ago. I walked by faith as she does. I tried not to complain and assured others I was ok. That is all very true for me and my friend. We can be strong Christians and still feel things intensely. We feel guilty for not being all we can be to our family when caregiving takes so much of our time. We need to rest and have little time for it.

Do yourself a favor and confide to a close friend that you need prayer and to just be held for a few minutes.

“When you receive or give a (consensual!) hug, your brain releases a flood of mood-boosting neurotransmitters and hormones, including endorphins, dopamine, serotonin, and oxytocin”. neuroscientist Dave Rabin, MD, PhD.

Isolation and loneliness are common when you are a caregiver. That hug may be just what you need!

Men need hugs as much as women. We all hurt and need comfort at times.

Caregivers get caregivers. We all face similar problems. Some see this as expressing their love. Some see this as a burden. Some feel stuck with the job that no one else wants to do. We all have our reasons for being a caregiver. We all understand the heaviness of our job. That commonality allows us to share our stories and encourage each other.

As supportive as my husband was, he didn’t truly get the load I had been carrying until he was providing care for his own parents. I had to show grace and not hold it against family who had not walked in my shoes yet.

Friends of caregivers don’t wait until others ask for a safe place to talk and really be heard. Watch for signs of weariness or anger and offer to listen or give them a break. Helping provide care will open your eyes to how much is involved day by day in your caregiving friend’s life.

Caregivers don’t attempt to bottle up your emotions. Find a trusted friend, family member or support group where you are heard and understood. Take that mask off and shed a tear or laugh. God is the place we lay our burdens down. Friends can help us do this. Go find a place to shout if you need to. I have been known to do this in my car traveling home after caregiving.

Word for Today

Matthew 11: 28-30

“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.”

Song for Today ( My husband sent me this link when I had just left my mom’s side. I had to pull over and cry. Little did I know my mom would be in heaven less than 2 weeks later. 2 days from now will be 10 years since I said goodbye. Miss her all the time.)

Prayer for Today

Dear God,

Forgive me for the times I try to do this job of caregiving all by myself. I thank you for sending Jesus to assist me when I am weary and burdened. I thank you for people in my life that came by my side to encourage me.

Open my eyes to other caregivers that need someone to hug them and pray for them.

Amen

Excited to See Love in Action

Recently, I spoke to my own church about how they could become more dementia friendly. This included information on how to come along side families and meet their needs as well as learning how to communicate and relate with the person who has dementia.

This type of training allows people to visit someone with dementia in their home without being afraid of the unknownand feeling uncomrtable. Isolation is not good for the person with dementia or the caregiver. They need to have people in their lives to comfort and encourage them. They need friends who can step in and offer respite care. Offering to stay with the one with dementia requires taking time to understand where they are in their journey and adjust to meet them where they are. True love is stepping up to the plate even if it makes you uncomfortable.

Do not ask a caregiver ,”What can I do for you?”. Use your observation skills. Does the lawn need mowing? Do light bulbs need changing? Think of practical things that they may need assistance with. Bring a meal over. Offer to change their car oil. Plant flowers in the flowerbeds.

We can all find a way to help.

The second part was about how we can meet their needs when they attend a church service. It takes a huge effort for the caregiver to actually get someone with dementia ready to go anywhere. Often there are clothing changes due to accidents. You only cause behavior issues if you rush to get ready. Confusion and crowds play into the equation as well. Both people will arrive tired.

Can someone who has served as an usher still serve with mild cognitive decline? Can this person still sing in the choir? Can this person still teach a Sunday School class? The answer to each of these questions is yes! They may need an assistant, but they can still find a purpose as long as possible.

Yesterday I watched an elderly gentleman follow a group onto the stage for a music special. He was seated and given a paper to follow along and he sang. I was moved to tears because I am pretty sure he had mild dementia.

If someone is on a walker, offer to visit with them at the door while the caregiver brings the car to the door. When friends come over to speak to the caregiver after service engage the person with dementia while their spouse shares a few moments with friends. If you notice a caregiver step out to go to the restroom, move over and sit with their loved one so they do not get afraid.

We can be the love that enters someone’s loneliness.

Word for Today

Luke 10:27

He answered, “‘Love the Lord your God with all your heart and with all your soul and with all your strength and with all your mind’; and, ‘Love your neighbor as yourself.’”

Song for Today

Prayer for Today

Heavenly Father,

Show me how to love as you love. Open my eyes to the needs around me and give me the compasssion to meet those needs.

Amen

Every Day Heroes

It was an honor to spend the day with every day heroes last week. I work with a group that hosts an annual symposium for Alzheimer’s and Related Disorders caregivers. This group includes amazing home caregivers and workers in the field who come to earn continuing education units. This photo was taken during a presentation on music therapy.

My assigned task at registration and check in is with the actual home caregivers. This is where I make new friends and hug old ones. Some walk in looking exhausted and needing a break from caregiving. Others walk in as couples and it is evident that one is the other’s caregiver. Siblings come in together to learn and support each other.

Our goal is for all to learn new information and leave encouraged. Our amazing volunteers and sponsors make homemade cinnamon rolls, provide lunch, set-up and break down, donate beautiful floral centerpieces and love on those who attend. Each vendor provides great door prizes for the caregivers.

A knowledgable caregiver is a better caregiver. I call them every day heroes because they give their all each and every day. My heart breaks when they are overwhelmed with little support. Many have given up income to be a caregiver. Many sacrifice finances to hire help. All are on duty 24 hours a day.

When these heroes complain, they almost always tear up and apologize. Guilt of not doing better weighs heavy on their shoulders. Many have expressed at the support group I lead that they feel ill equipped as a caregiver. They truly want to be amazing at what they do. One was battling with cancer while being a caregiver. Another walked in and announced she had suffered a mild heart attack. The group has bonded through sharing their stories and encouraging each other.

Are you one of these heroes I love so much? Do you have a support group to build you up and encourage you? I encourage you to seek one out. Perhaps your church would sponsor a day for caregivers.

If I could be with you I would share a cup of coffee or hot tea and then send you off for a nap while I became the caregiver for a couple of hours. Since I can’t be everywhere for everyone I pray that God will send a friend or family member to do this for you.

Word for Today

Isaiah 41:10

So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.

Song for Today

Prayer for Today

Dear God,

Lead me as I lead those around me. They now need me more than ever before. Show me how to connect with them so that they feel my love as well as yours. Thank you for the wisdom and grace you have given me as I serve as a caregiver to someone I hold dear.

Amen

The Perfect Caregiver

“Perfection is not attainable, but if we chase perfection we can catch excellence.” ― Vince Lombardi

There is no perfect caregiver. We all will miss the target. As Vince Lombardi stated we can chase perfection and catch excellence. If someone or something has the quality of excellence, they are extremely good in some way. If you are chasing perfection, you are discovering what your strengths and weaknesses are. Caregiving demands are high and varied. The tasks can change daily.

I think a perfect caregiver is someone who is striving to learn all they can about Alzheimer’s and preparing for changes that are inevitable. You make adjustments as circumstances and behaviors change. You find a balance of letting go of dreams and accepting the new future you face.

You acknowledge that God is the only perfect one. You will learn to rely on him to carry you when your load is too heavy for you to bear. I witnessed a man this week as he struggled to help his wife through some difficult days. The stress I expected to see was replaced with tear filled eyes and trembling hands. This man has a soft heart and the new situation he is in has taken quite a toll. Those are the days that break my heart as well. It was taking every bit of courage, patience, unselfishness and kindness he could find to survive. He was using all he had within him to show excellence as a caregiver.

My hope is that he has friends that will wrap their arms around him, pray for him and help him with practical things so he can rest. Caregivers want to get it all right. There are some things you can’t fix or get it right. Tiredness and frustration can make you hangry! I know that is usually used to describe an angry person who is very hungry. A hangry caregiver gets grumpy and irriatable. They are hungry for many things!

the normal they used to have
friendship and fellowship with others
assistance with chores
compassion from family members
meals someone else prepared
peaceful sleep
time to enjoy a hobby
hope that life will become easier

People can help with most of this list. Neighbors may offer assistance. Other family members may offer to provide care. Not eveything on this list will be met by people. These unmet needs have to be turned over to God.

Personally I remember times that I had to stuff pain, resentment, anger and grief aside to function. Imagine a large box that was packed to the brim. Then I would have to tearfully dump that box at the feet of Jesus. He would wipe away my anger. Comfort my pain and strengthen me to pick myself up and keep going refreshed and renewed. This cycle repeated itself often. I came to realize I could never be a perfect caregiver. I could catch excellence and be a better one.

You too can provide excellent care. Perfection is never going to happen. Look at your failures as learning experiences and improve or adjust your methods. You will find yourself growing in confidence as the journey continues. Be bold and be strong!

Word for Today

Jeremiah 29:11

For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.

Song for Today

Prayer for Today

Dear God,

Thank you for always having a plan even when I don’t understaand it. Give me the ability to trust you to carry the load when I can’t. Give me answers when I don’t know what to do. I choose to trust you and not myself.

Amen

I’ve Got That JOY JOY JOY down in my heart!

Enjoyment can be defined as the process of taking pleasure. I have pondered this a bit while being a young mother, a wife, a caregiver and then an older person who is no longer needed as a caregiver. During the stages of life, I have taken pleasure in many things. The circumstances around me have forced me to find new ways to find enjoyment.

If you are in a season of caregiving, you may have days you longed for something to enjoy. Maybe you have had to give up golf, tennis, travel or other activities. This is when you have to find new things to do together that both of you enjoy. Perhaps watching videos about travel is something you can enjoy. We do this because our budget as retirees limits us on travel plans. We have learned to enjoy and explore local places. Take a drive this fall and enjoy the color and cooler air. An apple orchard is always great for an apple cider. If you and the one you care for are mobile, rake leaves. Make sure to snap pics to record your memories.

My mom loved working crossword puzzles. We went to simpler puzzles with larger pieces when she could no longer work her old ones. Sitting there was not enjoyable at first. Seeing how content she was made just being with her enjoyable. When volunteering at a memory care unit, I found just watching the beautiful faces light up when we played games made it very enjoyable for me. It reminded me of watching a child learn to read. The sparkle in their eyes warms your heart.

You will make sacrifices during the entire time you are a caregiver. Keep looking and you will find ways to find joy in new things. After my mom passed away, my dad was lonely. He had given up a lot and was showing signs of cognitive decline. He found great enjoyment watching Alabama Girl’s softball and Alabama football. To be with dad, I would drive over and settle in to watch softball games and tournaments. Eventually, I got interested in the games as well.

The true source of my joy is God.

Romans 15:13

May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit.

Some days were extremely difficult as a caregiver and losing my parents. My husband and I did what we could for our parents. There is a scripture that I believe is true for my life.

“Honor your father and mother”—which is the first commandment with a promise— “so that it may go well with you and that you may enjoy long life on the earth.” Ephesians 6:2-4

We are now in a new season as some of you are. You honored the ones in your life who needed you. Now it is time to rediscover things on this earth that you can enjoy.

I am enjoying the farm life. We just added sheep and these beautiful livestock guardian dogs to our animals. We now schedule our days around feeding animals, gathering eggs, and grinding wheat to bake bread. It is quite a change from living in a metro area for over twenty years.

It is a wonderful change. As a child I longed to live in a subdivision like my friends did. Now,I am very content with the sounds of nature such as waking up to the rooster crowing and birds singing, growing our own food, and breathing in fresh air. It has plenty of adventure as well. In the last week I have been shocked by a hot wired fence, searched for a lost ewe who fell into a hole and herded sheep to a new area of the pasture. I had joked that as youth pastors we had herded teens. Sheep had to be easier… not true!

I share today to reassure you that new sources of joy can be found.

Helpful hint for October:

Halloween can be very nerve wracking for someone with dementia. Do not make the mistake of thinking someone loves children so they will love Halloween. The disturbance of the constant doorbell ringing will be startling. Seeing masked and costumed people can be frightening. Try to make plans for a quiet and sheltered evening.

I once advised a woman that taking her mother to a party at Chuck E Cheese for her great grandchildren was not a good idea. She ignored me and did it anyway. Her mother was frantic when they returned her to her assisted living facility. She even tried to jump out of a moving car. The poor woman was way too over stimulated and terrified by the characters and noise. Please realize that a person with dementia cannot process loud and active situations like you do.

Word for Today

Psalm 16:11

You make known to me the path of life; you will fill me with joy in your presence, with eternal pleasures at your right hand.

Song for Today

Prayer for Today

Dear God,

I thank you that you can give me contentment in whatever situation I find myself in. Sometimes it is a struggle as you know. I want to find my joy in you and trust you to open my eyes to the things you have given me to enjoy. Forgive me when I long for things I have had to sacrifice to be a caregiver.

I will praise you because the joy of the Lord is my strength.

Amen

Amazing Caregivers

It is a joy to be able to interact with amazing caregivers. They can be young, old and in betweeen. Their time is given freely or they may be paid. The amount of pay is usually not why the job is accepted. It is accepted because they have beauitful caring hearts.

When I ask a man I know how things are going, he almost always responds with a smile. He loves his wife dearly. As the conversation lasts a little longer. He admits that today his wife knew him but on many days she doesn’t. Her lastest thing is to move and hide things so he is always searching for misplaced items.

This morning I spoke with a paid cargiver. She said that during the night the woman she takes care of awoke and cried out because her room was on fire. The caregiver looked around and realized the glowing face of a clock had set off the panic. She turned the clock and reassured her. The lady then asked her to please lay down by her side. With a smile she did just that and the other one fell fast asleep.

I am a part of an organization that has a board consisting of several people who are employed as nurses, social workers, and nursing home administrators. Often I overhear how they have bought food for a family, picked up prescriptions for someone, allowed a visit to turn into much more as they changed a person and helped bath them while there. This world is full of people that know how to love and show love to families that need them.

If you are reading this and feeling like a forgotten person who is overloaded, I get it. Too many times you must bear way more than a light load. You are amazing as well. This job is never easy. There are few rewards other than knowing you are doing your best under trying circumstances. Please know that God is with you. He can give you wisdom, courage and strength to continue to be amazing. He amazes us and enables us to amaze our loved with with compassion and tenderness on the most demanding days.

My applause goes to you amazing caregiver!

Word for Today

Galatians 6:4

Pay careful attention to your own work, for then you will get the satisfaction of a job well done, and you won’t need to compare yourself to anyone else.

Song for Today

Prayer for Today

Dear God,

Shape me and mold me into a better person. Give me compassion and shower my soul with love that you pour into me so I can pass it on to those you have placed in my care.

Amen

Welcome to Our World

I read a news article today about what happened to our brains after living through the recent pandemic. Studies have been conducted about this and results are being presented. I just have to share a quote from the study with you.

“But we believe the cumulative stressors of the pandemic — such as prolonged isolation, disrupted routines, reduced physical and cognitive activity, and economic uncertainty — likely contributed to the observed brain changes,” Mohammadi-Nejad

We all know what it is like to experience all of the above for many years at a time as caregivers. How have we even survived? We have shown excellence in beating the odds and have God with us. We must be better equipped than most. ( Not judging…just observing).

Yes, this may sound snarky and uncaring toward those who struggle. I am venting and letting off steam for all of us who have learned to keep going when things are extremely difficult. Life can be very challenging and sometimes the ones who whine the loudest get all of the attention. Most caregivers I know are too busy to whine. We are equipped because we keep striving and learning. We fall on our knees when we are overcome and feel helpless.

Seriously, we do live in a world where isolation, stress, interrupted schedules and chaos can be the normal for many years as the person we care for is losing ground and we live in a state of flux where flexibility is critical. Please know that you are doing incredible things in a challenging situation. I would not wish this burden on anyone. Truly it is the heaviest one I have ever tried to survive. It was only when I chose to see caregiving as an act of love that I could see the positive side. It was only when I admitted that I didn’t have all of the answers that God became my guide in everything.

Our pandemic is known as Alzheimer’s disease. We have no vaccines. We sometimes feel abandoned because people fear the unknown. We do have others caregivers living in our situations. We are not alone! We have God and we have each other.

Word for Today

Ephesians 4:2

Be completely humble and gentle; be patient, bearing with one another in love.

Song for Today

Prayer for Today

Hello God,

It is me again just taking time to acknowledge you. When life is hard and I continue to press on, give me strength and people to stand with me. I thank you for allowing me to view caregiving as an act of love. You are my counselor, provider and comforter. You are the hope I stand on.

Amen