Rediscovering Yourself After Caregiving

My husband and I are fencing acreage on our farm to raise sheep. After years of ministry and secular jobs, we are excited to begin this adventure. Many lessons have been learned as we served in churches and as our own family members caregivers. How did we decide that adding sheep would be the thing we both wanted to do?

Reflecting on the bible verses below helped us arrive at this decision.

Psalm 23:1

“The Lord is my shepherd; I shall not want.” – Psalm 23:1

Isaiah 40:11

“He tends his flock like a shepherd: He gathers the lambs in his arms and carries them close to his heart; he gently leads those that have young.” – Isaiah 40:11

John 10:11

“I am the good shepherd. The good shepherd lays down his life for the sheep.” – John 10:11

Psalm 78:52

“But he brought his people out like a flock; he led them like sheep through the wilderness.” – Psalm 78:52

We both know that depending on God fully is the only way to live a life with peace. When we look out over the fields we will remember how God has been our good shepherd. We will shepherd our sheep and be grateful for all God has done for us.

Our goal is for our farm to be a place where people feel God’s peace and love. Visitors can sit on our porch or around the fire pit we plan to build and share life. Needs, hurts and heartaches will be discussed. Prayers will be prayed and we can share our story of God’s goodness and love.

I challenge you to look at the things you have laid aside to be a caregiver. Even if you are still a caregiver, you can evaluate where you are. What skills did you gain? What did you do well? What do you look forward to later?

For us, farming helps us slow down to rest and let our bodies and emotions heal from the 15 year marathon we ran taking care of our parents. We frequently pause now to watch sunsets, hummingbirds and butterflies. We listen to doves and quail. Our rogue rooster gets out and follows us like a puppy. Our hens gift us an abundance of eggs. We fish, garden, read, listen to music and breathe fresh air.

Writing is something I dreamed of doing as a child. Books were my friend. Finally, I am beginning to step into the waters as a writer. I enjoy teaching others about Alzheimer’s and how to be a caregiver. I have developed a deep love for connecting with people with Alzheimer’s disease.

Prior to being a caregiver there were several things I would never have believed. One was that I would love moving back to a country home. Two was that I have the confidence to lead. Three was that God would allow me to be tested with fire and come out safely on the other side. This leaves me assured that even unanswered prayers are heard by My Good Shepherd and He has a plan bigger and better than any I have ever had.

Trust God with the plan for your life. He is chiseling away rough edges. He is allowing pressure to shape you. You are a diamond that He is polishing. It hurts. It is lonely, but you are never truly alone. Sometimes God is silent, but He is there. One day on the other side of caregiving, you will understand what God was doing in you as you poured your life out to others.

God has a plan for the remainder of your life. Trust Him.

We will protect our sheep just as God protects us. Read the verses again and let your soul and faith be renewed.

Word for Today

Proverbs 3:5-6

Trust in the Lord with all your heart; do not depend on your own understanding. Seek his will in all you do, and he will show you which path to take.

Song for Today

Prayer for Today

Dear God,

I praise you for being my shepherd. When I stumble and flounder around, you guide my steps. When I am afraid you are here. When I feel inadequate, you remind me that your strength is perfect. Humbly I follow you knowing that your path is the right one.

Amen

A Grateful Heart

“God’s grace is the bridge that carries us from our brokenness to His wholeness.”

When you love deeply, you risk facing brokenness. As a caregiver you dig deep into your well of love to shower on someone else. That love is not always recipocated or recieved. The bible talks about wells that were dug. The enemies of Abraham filled the wells with dirt. Later when wells were dug, others claimed the wells as theirs. God has always provided when the enemy attempts to destroy. The deep well of your love is critical to guard from the enemies attacks so the love pouring out of it is pure and refreshing to others.

A crack in your heart begins the first time a family member shows behaviors toward you that you never have seen before. A kind and generous father may become angry and say and do things that you never thought you would see. Your childhood hero has transformed into a demanding and selfish person. Keep in mind that your hero is still there. A nasty disease has reared it’s ugly head. You have to allow God to sew a stitch in the crack of your heart and reach deeper to love while you yourself are hurting. I know that as I have hand stictched the binding onto quilts for each of my grandchildren I thought of them and prayed for their lives. Imagine the grace and love God is stitching into your heart with each stitch He sews.

As Alzheimer’s progresses you will see a person’s life going in reverse. I was watching a parent become incontinent at the same time a grandchild was being potty trained. With the grandchild, it was exciting. First steps toward independence were being taken. We would assist as they mastered their new skill. Cheering them on was fun as we saw their excitement. Assisting a parent or spouse brought sadness as their independence was being stolen away. You tried to preserve their dignity. You went shopping for depends with a sadness inside.

Sitting by my mom’s side and spooning yogurt into her mouth was done with vast amounts of love. We had now truly reversed roles. My heart was filled with gratitude for the woman who had tended to my needs for so many years. The memories I had were not always wonderful, but thanking God for the great ones and forgiving for the few ones that were not so good allowed me to heal. A healed heart and a grateful heart hold so much more to be poured out. God sewed the gaping hole together so I could pour love more freely.

I was at my dad’s side when he grew confused. He had oxygen tubing in and was irritated by it. I reached to adjust the tube after he removed it. He grabbed both of my wrists and cursed. I calmly reassured him that I would take it off for a while and then exited the room. My heart was breaking because I had never experienced that behavior or heard those words come from his mouth before. A protective relative followed me out. She was quite angry at my dad. Tearfully, I told her this was not my dad. This was a man whose cognitive decline were acting and speaking. God had allowed me to keep loving my dad as if this event had never happened. God had reenforced the stitched seams as the event unfolded.

A day will come when someone looks you in the eye and doesn’t know who you are anymore. That is when it feels like your heart rips in half. It hurts intensely as the hard truth sinks in. You may have to retreat to a quiet place for God to heal your heart and then recover slowly. Day by day you will feel strengthened as you pray and rest in God’s peace. His Intensive Care Unit is outstanding. When you exit and are ready to face the task at hand, you will have a grateful heart filled with overflowing love once more.

Day by day God will hold your heart in his hands.

Word for Today

Colossians 3:16

Let the message of Christ dwell among you richly as you teach and admonish one another with all wisdom through psalms, hymns, and songs from the Spirit, singing to God with gratitude in your hearts.

Song for Today

Prayer for Today

Dear Heavenly Father,

You amaze me with your healing and forgiveness. Teach me to forgive when others misunderstand or reject my love. I am guilty of wanting to quit loving as deeply as you ask of me when I am hurting. Tenderly hold me and restore me so that I can pour love out to those who are depending on me to meet their needs. I want to serve with a heart of gratitude.

Amen

Kitchen Table Talks

Many people will walk in and out of your life, but only true friends will leave footprints in your heart.

Eleanor Roosevelt

The past week has been filled with old friends, new friends and family. Some of the days were carefully planned and others were unexpected occurances. Close freinds came for a brief visit of a few days. We hugged, shared meals, laughed and took them sightseeing in our area. One of them is struggling with his mother’s care. He goes to visit her often, but feels guilty that his sister is bearing most of the load. My husband and I listened and shared advice. Our hearts truly felt his pain.

On one of our adventures we met a couple who struck up a conversation. The lady voluntered that she had recently lost her mother to Alzheimer’s. She was generally surprised to learn that I lead a support group and wanted more information.

After our friends left, I heard a knock at the door. Our neighor had dropped by to escape his home for a few minutes. Tension was high and he needed to escape. His elderly mom has moved in with him and his wife works in a stressful job from home. That in itself may have some of you nodding your heads. We have all had days that we needed a little escape. Finding a safe place to do that can prove to be difficult. He felt safe enough that he found an excuse to drop by later in the week to let us know things were better.

Last night my brother-in-law came over for dinner. After eating, we settled in our family room to talk. Eventually, he had questions about dementia and wanted to know how to help a friend. He has experiece from dealing with his mom and was well aware that symtoms can vary.

You may find yourself interacting with a caregiver who needs a listening ear, word of encouragement, practical advice or prayer. These moments often happen in unexpected circumstances or times. Maybe you are the caregiver needing that for yourself. My prayer is that God continues to direct paths to cross on this journey. I know I have been in both positions and have been so fulfilled when friendships have developed along the way.

Have a blessed day and trust God to send someone your way to comfort you or for you to comfort.

Word for Today

Proverbs 17:17

A friend loves at all times, and a brother is born for a time of adversity.

Song for Today

Flashback song to make you smile

Prayer for Today

Dear God,

Thank you for always knowing how fragile I am at times and sending someone my way. Thank you for the friends I have made along the caregiving journey. Touch their hearts today as you have touched mine.

Amen

Tag…You Are It!

I always felt handicapped when on the playground as a child. My height as a full grown adult is only five feet. Most people run faster because their stride is longer. That feeling continues off the playground. On a vacation several years ago we were walking through Vancouver Cananda. Everyone in the group except me was 6 feet tall. Their casual stroll was a fast paced walk for me trying to keep up. After a long morning of sightseeing and a lunch in Chinatown, I found a bench and instructed them to continue on, I would wait for them and join the group later. They were frustrated and urged me to keep walking. I refused. I was exhausted.

Many times when a family member is diagnosed with Alzheimer’s disease, everyone panics and wants to run before they are tagged it as the caregiver. When we face uncertainty or a complex situation, we all find excuses. This is not uncommon or new.

Long ago a man named Gideon was hiding while grinding wheat. A group of people known as the Midianites had tormented the Israelites. They raided their fields, animals and land. The Israelites cried out to God for help. Gideon was simply hiding in a winepress and grinding wheat when an angel appeared. The angel told Gideon to gather an army to fight the Midianites. Gideon had an excuse. He responded, “my clan is the weakest, and I am the least of my family”.

We may feel the same way Gideon did, inadequate and a little fearful. We use many excuses such as ” I am too busy to take care of mom” or “she has always like you best so you would be better doing this”. What we are really saying is that this is going to be too hard for me. Tag someone else for caregiver.

God had a word for GIdeon. It was simple and plain but spoken in truth. “I will be with you” is what Gideon heard. As an experienced caregiver I can attest to that statement. God showed up each and every day on my journey.

While there are a vast number of books, training and podcasts for caregivers, they can only prepare and advise you from other people’s experience and knowledge. Every case of Alheizmer’s is different. Every day may even be different. I understand why you want to run away.

God was my guide on the journey of caregiving.

When I was traveling 6 hours each way God allowed me to find still waters. (Psalm 23:2)

He makes me lie down in green pastures,
he leads me beside quiet waters,

When I had to make difficult decisions He lead me to the right one. (Psalm 25:9)

He guides the humble in what is right
and teaches them his way.

When I floundered God sustained me and still does. (Psalm 54:4)

Surely God is my help; the Lord is the one who sustains me.

When my parents and In-laws passed away God comforted me. (Psalm 23:4)

Even though I walk
    through the darkest valley,
I will fear no evil,
    for you are with me;
your rod and your staff,
    they comfort me.

When people suggested I was not doing things right God reassured me. (Psalm 73:24)

You guide me with your counsel,
and afterward you will take me into glory.

When criticism and judgements became harsh God whispered in my ear. (Isaiah 30:21)

Whether you turn to the right or to the left, your ears will hear a voice behind you, saying, “This is the way; walk in it.”

When the long nights of feeling helpless kept me awake God calmed me. (Isaiah 42:16)

I will lead the blind by ways they have not known,
    along unfamiliar paths I will guide them;
I will turn the darkness into light before them
    and make the rough places smooth.
These are the things I will do;
    I will not forsake them.

God didn’t send me an actual angel like Gideon had, but he used people who lended themselves to be God’s servants. Cards came in the mail. A stranger knocked on my dad’s door with a bouquet of flowers. A nurse found a quiet place in the emergency room to pray for me. A neighbor brought our dinner. Friends prayed, laughed and cried with me. My amazing husband walked each step of the way with me.

In parting, I readily admit that there were times when I longed for someone to slow down enough for me to tag them and say “tag, you are it”. Those thoughts were fleeting because I know what an honor it was to walk my parents to their final home in heaven. If you have been tagged, remember that God is with you.

Wondering what happened to Gideon? It is a really cool story. Dust off your Bible and read Judges 6 and 7. It definitely is reassuring to know when you get tagged by God, He goes to battle with you.

Word for Today

Surely God is my help; the Lord is the one who sustains me. Psalm 54:4

Song for Today I just couldn’t resist reminding you of other battles God fought.

Prayer for Today

God,

I am not sure why I have been chosen to be a caregiver. Humbled I come to you as my guide. Give me courage, patience and compasssion. Equip me for the journey and walk beside me each step of the way.

Amen

Men Fix Things

Today I am addressing the men who are caregivers. Most men by nature are fixers. Give them a problem and they immediately begin making plans to fix the problem. Sometimes they don’t even stop to listen to the fine print details you need to express to them.

I am married to one of those men. He is amazing, He truly is a jack of all trades. He has a shop full of tools. He has backups for backups when it comes to being prepared. Now that you tube is available, he keeps expanding his knowledge. While I am inside writing, he is outside repairing pvc pipes on our rain catchment system.

I could continue to expound upon how much money we have saved because he doesn’t need to call a repairman. Having said all of this, even he had to face reality when he was caring for his mom with vascular dementia. He simply could not fix things for her. There were days that I observed as he applied every tool in his caregiver toolbox. He proofreads my blog. He listens to my lessons when I teach. He hears me counseling caregivers on the phone. He attends seminars with me. He has a vast amount of knowledge in this area. There are days that no tool works. You have to accept that it is in God’s hands and just be present and show love in any way you can.

Women, we face days that we just can’t fix it as well. I felt like a complete failure one day at my mother-in-law’s side while she was determined to get out of her hospital bed. She was a serious fall risk and was struggling with me as I blocked her way while calling for assistance. The dementia began to speak loud and clear in words I had never heard from her. She was kicking, shoving and doing her best to win this battle. She yelled this to me “you are the most demanding person I have ever met”. Instead of biting my tongue, I exhaustedly replied. “no, you are”.

Nurses arrived and I excused myself from the room and dissolved into tears. I tell all of you to remain calm and compassionate. There are times that it is very difficult. I knew she had always been used to getting her way. I didn’t expect the dementia to make determination her super power.

Men and women struggle. There will be days when you feel helpless and frustated. You have ridden and emotional rollercoaster that just never seems to stop. The ups and downs, the twists and turns have left you exhausted and hurting. You finally collapse into bed and tears fall. This is not the end. You must get up and go again tomorrow. The only thing I found that allowed me to keep going was to place the person I could not fix into God’s hands and then climb into those same hands so God could comfort both of us.

Each day of caregiving brings surprises through hearing words come out of a loved one’s mouth that shock you or losing your loved one who slipped out the door. Objects in your home may decide to hide in new places. A shoe may show up in the refrigerator. You are left with a choice to make. Try to correct the behavior or accept that today has brought a new adventure. Word of advice offered here. Trying to correct the new behavior is the wrong choice!

The only thing we can truly fix is our own reactions to the behaviors. If all dad will eat is ice cream, let him eat ice cream and try healthier choices later. If your wife refuses a bath, try again tomorrow. Choose your battles.

Word for Today

Isaiah 40:29

He gives strength to the weary and increases the power of the weak.

Song for Today

Prayer for Today

Dear God,

It has been one of those weeks where I tried to do things in my own wisdom and power. I so want to fix the behaviors and changes in my loved one. My heart is filled with pain while I mess things up and sit idly by. I need you to take control and give me the faith and peace to trust in you being in control.

Give me strength when I feel weak. I thank you for hloding me together when I feel as if I am faling apart.

Amen