Lewy Body Is Different

Alzheimer’s disease has many early signs such as memory issues. The mental cognition has a slow decline over time. Lewy Body is not so predictable. I experienced this first hand. My mother had Alzheimer’s disease. We thought that my mother-in-law had vascular dementia and no one tested for Lewy Body disease. As I educate myself about LBD, I tend to lean heavily to the thought that she had it.

Lewy Body Disease (LBD) is a progressive briain disorder. Alpha-synuclein is a protein found in the brain. When these clump together it is known as Lewy bodies. Cells normal function is interrupted resulting in cognitive decline, hallucinations, delusions, sleep disturbances and motor issues.

I saw signs of cognitive issues but they were vastly different than Alzheimer’s. Her memory was pretty much intact. She would appear perfectly normal one day and confused the next. Her essential tremors ramped up. Most of the families members did not see symptoms in the early stage.

She would insist that someone had told her they would take her shopping and be upset when they did not show up. She would attempt to bake a cake and leave the flour out. She developed paranoia. She loved football and watching her favorite team. She would cheer over a play and then cheer again over the replay or go to the kitchen and never return to finish watching the game.

Then when her spouse passed away things escalated quickly. A huge delusion caused us to have to move her to an assisted living facility. Once there she often called to give me detailed accounts of visitors who were never there. Her hallucinations were described in full living color. She would be very convincing in her stories.

We experienced capgas syndrome. This is a psychiatric disorder where she held a delusion that we had been replaced with imposters. We would go visit and she would tell us who we were supposed to be but we were not real. We were imposters who looked, acted and sounded like us. Try explaining that one! Some day the chef or nurse were imposters as well.

A bouquet of flowers brought her joy. One day a lion was in the flowers. The next day monkeys were in the flowers. When I went to visit, a dancing lady was in the flowers. Before we all got stressed out, I decided the flowers were wilting and needed to be disposed of. A nurse smiled as I deposited them into the trash. Apparently she had be informed of the busy bouquet.

Falls became more common.

She became less social.

The whole experience was very different than the one with my mom. I truly wish I had known more while my mother-in- law was alive. We did the best we could.

I highly recommend a book if you suspect your loved one may have LBD.

Living with Lewy’s by AmyJ Throop and Gerald S Throop. It opened my eyes to many things. Hopefully, you can get information that helps you. Don’t give up when seeking a physician that can give you a diagnosis other than mild cognitive decline.

Don’t give up. You are learning and improving as a caregiver each day.

Word for Today

Proverbs 2:6

For the Lord grants wisdom! From his mouth come knowledge and understanding.

Song for Today

Prayer for Today

Dear God,

I thank you that I can rest in you on the days that are hard. Give me wisdom as I help my loved one struggling with reality. Give me courage. Give me strength to trust you.

Amen

Amazing Caregivers

It is a joy to be able to interact with amazing caregivers. They can be young, old and in betweeen. Their time is given freely or they may be paid. The amount of pay is usually not why the job is accepted. It is accepted because they have beauitful caring hearts.

When I ask a man I know how things are going, he almost always responds with a smile. He loves his wife dearly. As the conversation lasts a little longer. He admits that today his wife knew him but on many days she doesn’t. Her lastest thing is to move and hide things so he is always searching for misplaced items.

This morning I spoke with a paid cargiver. She said that during the night the woman she takes care of awoke and cried out because her room was on fire. The caregiver looked around and realized the glowing face of a clock had set off the panic. She turned the clock and reassured her. The lady then asked her to please lay down by her side. With a smile she did just that and the other one fell fast asleep.

I am a part of an organization that has a board consisting of several people who are employed as nurses, social workers, and nursing home administrators. Often I overhear how they have bought food for a family, picked up prescriptions for someone, allowed a visit to turn into much more as they changed a person and helped bath them while there. This world is full of people that know how to love and show love to families that need them.

If you are reading this and feeling like a forgotten person who is overloaded, I get it. Too many times you must bear way more than a light load. You are amazing as well. This job is never easy. There are few rewards other than knowing you are doing your best under trying circumstances. Please know that God is with you. He can give you wisdom, courage and strength to continue to be amazing. He amazes us and enables us to amaze our loved with with compassion and tenderness on the most demanding days.

My applause goes to you amazing caregiver!

Word for Today

Galatians 6:4

Pay careful attention to your own work, for then you will get the satisfaction of a job well done, and you won’t need to compare yourself to anyone else.

Song for Today

Prayer for Today

Dear God,

Shape me and mold me into a better person. Give me compassion and shower my soul with love that you pour into me so I can pass it on to those you have placed in my care.

Amen

God Does Not Forget

We lose hope, get worn out, become discouarged and forget we cannot do it all. Our frustration snowballs into a large mound of guilt and helplessness when we cannot penetrate into the mind and soul of a loved one who is trapped. They live in a body with a mind that can no longer express itself. We can try to meet them but only God can go there sometimes.

God has known our loved me since knitting them together in their mother’s womb. He knows their heart and soul. His spirt can penetrate through the fog and reach them.

I have sat in my mom’s room when all she could do was moan and groan. It felt as if a knife was stabbing me in the heart. The only way I could stay with her was knowing the God was with us.

In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us through wordless groans. Romans 8:26

God’s spirit not only groaned with mom, but God hears our groaning.

Exodus 2:24

God heard their groaning and he remembered his covenant with Abraham, with Isaac and with Jacob.

Exodus 6:5

Moreover, I have heard the groaning of the Israelites, whom the Egyptians are enslaving, and I have remembered my covenant.

We are living in a time when groaning is slipping from all of our lips. Life here is winding down and we are seeking an eternal home. The bible tells us the following:

Romans 8:22

We know that the whole creation has been groaning as in the pains of childbirth right up to the present time.

I do believe that my mom was looking to heaven. Perhaps her groaning was her crying out to God to welcome her home. This brought me peace on the days there I hurt the most.

My husband and I have been traveling over the last couple of weeks. During our travels God allowed us to meet random people who mentioned they had just lost a grandfather to Alzheimer’s or were living with a uncle who has Lewy Body disease. This was at an outdoor homestead expo. As we talked a small group gathered around us and joined in. Most of them either had a family member with Alzheimer’s or had lost someone close to them who had dementia. The phrase we heard again and again was that God is the only way they got through this.

Later, we attended a wedding. There was a memory table with photos and Bibles that had belonged to the couple’s grandparents. I looked at these and knew how much these grandparents loved their grandchildren and modeled a life of love for them. I looked at the pic of my mom and dad and hoped God could let them see a glimpse from heaven of their growing family. As much as I would have loved to have them with us, I had rather know they were in heaven where disease and age not longer caused them to groan.

As you continue to serve as a caregiver, know that God is with you on the good days and the toughest of days. He will never abandon you or your loved one. We can continue on in His strength until one day when God hears all of our groanings and calls us home.

Have a blessed day filled with peace and comfort.

Word for Today

2 Corinthians 1:3

God Offers Comfort to All

All praise to God, the Father of our Lord Jesus Christ. God is our merciful Father and the source of all comfort.

Song for Today

Prayer for Today

Dear God,

Thank you for the peace and comfort only you can bring. Thank you for hearing the groaning and cries from our heart when the pain hits hard. When we feel helpless, you step in. You understand our pain because you sent your son to die on a cross for us. We look forward to the day you call all of us away from the suffering and pain. Give us courage to carry on until then.

Amen

Rediscovering Yourself After Caregiving

My husband and I are fencing acreage on our farm to raise sheep. After years of ministry and secular jobs, we are excited to begin this adventure. Many lessons have been learned as we served in churches and as our own family members caregivers. How did we decide that adding sheep would be the thing we both wanted to do?

Reflecting on the bible verses below helped us arrive at this decision.

Psalm 23:1

“The Lord is my shepherd; I shall not want.” – Psalm 23:1

Isaiah 40:11

“He tends his flock like a shepherd: He gathers the lambs in his arms and carries them close to his heart; he gently leads those that have young.” – Isaiah 40:11

John 10:11

“I am the good shepherd. The good shepherd lays down his life for the sheep.” – John 10:11

Psalm 78:52

“But he brought his people out like a flock; he led them like sheep through the wilderness.” – Psalm 78:52

We both know that depending on God fully is the only way to live a life with peace. When we look out over the fields we will remember how God has been our good shepherd. We will shepherd our sheep and be grateful for all God has done for us.

Our goal is for our farm to be a place where people feel God’s peace and love. Visitors can sit on our porch or around the fire pit we plan to build and share life. Needs, hurts and heartaches will be discussed. Prayers will be prayed and we can share our story of God’s goodness and love.

I challenge you to look at the things you have laid aside to be a caregiver. Even if you are still a caregiver, you can evaluate where you are. What skills did you gain? What did you do well? What do you look forward to later?

For us, farming helps us slow down to rest and let our bodies and emotions heal from the 15 year marathon we ran taking care of our parents. We frequently pause now to watch sunsets, hummingbirds and butterflies. We listen to doves and quail. Our rogue rooster gets out and follows us like a puppy. Our hens gift us an abundance of eggs. We fish, garden, read, listen to music and breathe fresh air.

Writing is something I dreamed of doing as a child. Books were my friend. Finally, I am beginning to step into the waters as a writer. I enjoy teaching others about Alzheimer’s and how to be a caregiver. I have developed a deep love for connecting with people with Alzheimer’s disease.

Prior to being a caregiver there were several things I would never have believed. One was that I would love moving back to a country home. Two was that I have the confidence to lead. Three was that God would allow me to be tested with fire and come out safely on the other side. This leaves me assured that even unanswered prayers are heard by My Good Shepherd and He has a plan bigger and better than any I have ever had.

Trust God with the plan for your life. He is chiseling away rough edges. He is allowing pressure to shape you. You are a diamond that He is polishing. It hurts. It is lonely, but you are never truly alone. Sometimes God is silent, but He is there. One day on the other side of caregiving, you will understand what God was doing in you as you poured your life out to others.

God has a plan for the remainder of your life. Trust Him.

We will protect our sheep just as God protects us. Read the verses again and let your soul and faith be renewed.

Word for Today

Proverbs 3:5-6

Trust in the Lord with all your heart; do not depend on your own understanding. Seek his will in all you do, and he will show you which path to take.

Song for Today

Prayer for Today

Dear God,

I praise you for being my shepherd. When I stumble and flounder around, you guide my steps. When I am afraid you are here. When I feel inadequate, you remind me that your strength is perfect. Humbly I follow you knowing that your path is the right one.

Amen

Make the Most of Your Time

Alzheimer’s disease erases many memories for the person living with the disease. Memories for family members will live on and be cherished. We have technology now to save voices, laughter, stories and visuals of our family and friends. If you have a family member in the early stages of dementia please use that technology. I left messages on my phone for years just to hear my parents voices.

Even if you do not have Alzheimer’s in your family now, you may someday. Listening to the spousal caregivers talk about what they miss the most is causing me to be more deliberate about making and saving memories that I and my husband can hang on to should one of us be left alone.

I changed phones and lost a video that I treasured. My mom was dancing and laughing with her youngest grandson. Prior to having Alzheimer’s she would never have acted this silly. We all sat watching in awe. We were in awe over the fact that she was truly happy and in the moment with him. I was pondering about how much longer we would be able to hear her laugh.

Years later I watched that same grandson see my dad wiggle his ears. Every grandchild, niece and nephew loved watching dad do this little trick. Dad had been so busy taking care of mom that he hadn’t thought to show this youngest grandchild his ear wiggling. My nephew sat trying his best to master this for himself while dad smiled. Dad passed away one week later.

Don’t put off taking small trips, watching sunsets, sharing hugs and expressing love to each other. Make the most of your time. Life moves at a fast pace and it is way to easy to get caught up in the busyness. My heart hurts when a senior citizen is the sole caregiver for their spouse. They look at me and tell me they cannot ask their children to help. They have their own lives and are busy.

Allow me to speak for these caregivers. Find the time to honor your parents. You are robbing yourself of something you can never get back. You can find time to meet a friend for coffee or attend a sporting event. You can find time for social media. You can find time to check on mom and dad.

“Family is not an important thing. It’s everything.” —Michael J. Fox

A huge excuse we often hear is “It’s Complicated”. When someone has Alzheimer’s their life and their caregiver’s life are complicated. Family can find a way to work through all of the complications and help each other survive. Asking God to make a way for you to do life together is a great first start.

Personally, there was a lot of travel and expense involoved during our time as caregivers. I gave up a job. God has abundantly blessed us along the way. It was an honor to be with my parents in their final days.

Caregivers, speak up. Give your children an opportunity to find ways they can help. Give them opportunities to make memories while they can.

Word for Today

1 John 3:18

Dear children, let us not love with words or speech but with actions and in truth.

Song for Today

This song refers to when we allow walls to form between us and God.

Prayer for Today

Dear God,

We need you to tear down walls and heal our hearts so that we can share life with those in our family. Show us how to build bridges instead of walls. Draw us closer to each other as we draw closer to you. Teach us to find balance in this life. Give us moments of genuine love as we show compassion and grace to those around us.

Amen

Alzheimer’s Language

I am far from being bilingual. This makes it difficult when I am around someone who’s native language is not the same as mine. Caregiving for someone with Alzheimer’ disease has forced me to face the stark reality that I had no choice but to learn to speak and understand a language that my parents now spoke. One parent lived in a new territory that I refer to as Alzheimer’s World. My other parent was residing in a territory I will call Mild Cognitive Decline World. To travel to their world, I sometimes felt like the one who was confused and lost. The most challenging part was having two parents living in different worlds at once. While neither was fun and exciting like Disney World, both provided excessive amount of adventure.

Once upon a time, I lived in “Normal World” with my parents. They were great parents and did their best to provide a nourishing and loving environment for my brother and I. They were active in their church, jobs, Lions club, Band Boosters and Atheletic Boosters. Steady and dependable are words that describe them the best. No family is perfect, but we grew up thinking ours was close. My brother and I were busy with our own families after becoming adults. Life was good.

Skip ahead several years and we began to see cracks in the armor of our parents. This happens as we become adults. This was different though. Slight personality changes were obvious in our mom. Dad was doing a wonderful job of hiding this from us in the beginning. Eventually, it could be hidden no longer. We were faced with seeing that “Happily Ever After” was not going to be the ending of their story.

Dad needed help navigating the progression of Mom’s Alzheimer’s. Stress was mounting as he floundered. He was giving a major effort to care for her. This once young athletic guy with no sisters even learned how to apply her makeup and assist with her hair. He cooked, cleaned and gave it his best.

That is when my quest to learn all I could about this disease began. I bought books, searched online and found a caregivers support group. In a sense immersing myself in this was a boot camp. Much was learned quickly. I want to share a brief amount of helpful information to help you learn Alzheimer’s language.

Rules for the Caregiver

Do not argue.
Do not try to talk them out of anything.
Do not try to make them remember.
Enter their reality.
Do not try to reason with them.
Stay calm

The disease is in control and not the person you are caring for. Try to separate the two.

Speak slowly and give them time to process short sentences
Rather than give an order, ask for a favor
Monitor your own emotional state
Redirect and distract with music and other activities such as snacks or taking a walk
Release your expectations of them to be who they were in the past.
Remember that their new reality is just as real to them as yours is to you

Facial expressions and your tone of voice speak volumes!

When dad began to have unexplained falls I suspected mini strokes. While he was mom’s primary care giver, he was beginning to show a loss of judgement. I would observe and make suggestions. Dad would get upset and walk away from conversations. I learned to let it go and wait. He would call me a couple of day’s later with a wonderful idea of how to handle a situation. I would listen as he told me the exact idea I had given him. I would then let him know that I thought it was a wonderful idea. This preserved his dignity and it worked. One day he ws mad and informed me that my brother and I were trying to control his life so were no longer his power of attorney. The next day he called wanting me to come and explain insurance papers to him. I told him I was no longer his power of attorney. He replied, “Oh, yes you are”.

Learning the best way to communicate with him was to allow him to think everything was his idea. You will learn to speak a language that they understand through trial and error. It can occur though if you are persistant.

You can do this! God will be your constant help when you feel anxious, sad or ill equipped.

Word for Today

Colossians 3:12

Therefore, as God’s chosen people, holy and dearly loved, clothe yourselves with compassion, kindness, humility, gentleness and patience.

Song for Today

Prayer for Today

God,

I praise you for the love and kindness you show to me. Give me the ability to share that kindness as I learn to communicate with others, especially those with dementia. Help me to listen more and speak to them in a way they understand. My greater desire is for you to continue to speak to their hearts and souls through their confusion.

Amen

Physical Touch Matters

Tactile has to do with the sense of touch. Dipping your hand into cool water is tranquil. Think of your favorite memories involving touch. I have many. One was walking barefoot through a freshly tilled field and digging my toes into the warm soft dirt. Another was sitting on the sofa and rubbing my grandfather’s head. He loved this and would often request it. I loved him too much to ever say I would rather be outside playing. That same love connected us as he lay in a hospital bed and made the same request. I pulled my chair close and wondered how many times will I have left to express my love in his love language.

Alzheimer’s disease often robs people of their fine motor skills. Activities they once enjoyed become a struggle. Opt to put together puzzle with larger pieces rather than small ones. I was able to find puzzles adults can enjoy with a smaller number of pieces and larger size. I avoided puzzles labeled for dementia. The person may still be able to read and feel ashamed or embarrassed. Be sensitive to this please.

Ask them to assist you and assign them simple task that don’t really matter. Let them fold towels and washcloths. Let them match socks. If they get it wrong no harm is done. They still feel needed and productive. Just consider what they can do safely, and ask them to help.

In prepping food let them tear the lettuce for a salad. You chop the veggies and let them arrange them in a salad or platter.

When presenting food, peel their orange before serving it. Just think of what you would serve a toddler. This can be done in a way that preserves their dignity. Prepare your own snack to look like what you serve them.

My mom loved pretty clothes. She struggled with buttons and zippers in the early stages. This ususally happens later for most people. It depends where plaque forms in the brain. We moved to pull on tops and pants without zippers. That was quite an adjustment for her. Thankfully, the local mall had a store that carried a line of beautiful clothing the she liked and it laundered easily. Then one day we had to replace the beautiful clothing with simple gowns that made life easier for caregivers who had to bath and change her.

When someone has dementia they may forget what to do with a hairbrush, comb or toothbrush. This is when you need to offer tactile cues. Please visit the following link to see this demonstrated. https://www.dementiacarecentral.com/video/hand_under_hand/#:~:text=This%20video%20clip%20shows%20how%20to%20use%20tactile,are%20also%20important%20%28time%3A%201%20minute%2030%20seconds%29.

Another thing you may face is how to handle inappropiate touchs. I was volunteering one day and had a new necklace on. It was a large flower and I was so grateful I had it on. A gentleman approached me with his hands extended toward my chest. I quickly took his hands, moved them to my necklace and asked if he liked it. The nurse who witnessed this action hid a smile but her eyes were dancing. Later she complimented me on my quick thinking.

Physical touch can be accomplished with ease once you observe and find what is comfortable for the person with dementia. I often take hand lotion with me on visits. No one refuses a massage of their hands and fingers as I talk quietly with them and rub the lotion in. Often a hug is appreciated. Hug from the side when possible. Ask if they would like a hug. Remember the above story and be careful! Many times a person with dementia and their caregiver need physical touch to remind them they they are loved.

Ladies love manicures. You never know how much your kindness means.

Touch sensitivity can be lowered. This can make it hard to sense pain or temperature, which can pose potential safety risks. They may not realize how hot or cold an item is. They may not feel pain from a small cut. Pay attention to their skin.

I know a man who refused to shower. His daughter questioned him about why he wasn’t taking a shower. He finally admitted that he could not adjust the water temperature right. The simple solution was for him to ask for assistance in turning the shower on. After showering he could step out and ask for assistance turning the water off. He could have been confused about how to control the shower handles or he could be sensing the water temperature differently than he had before. Sometimes it takes a little investigative work to discover the real problem. Others may refuse to shower because the water hitting their skin feels different.

I cannot discuss touch without mentioning how important spiritual touch is both to the caregiver and the person with dementia. Turning to God is a choice the caregiver makes. Reminding the person with dementia that God loves them is so important. Listen to music, read the Bible together. Pray together. Allow friends and family to be included in these activities.

Word for Today

Colossians 3:12

Therefore, as God’s chosen people, holy and dearly loved, clothe yourselves with compassion, kindness, humility, gentleness and patience.

Song for Today

Prayer for Today

Dear God,

It is good to sing your praise. We join hands today and reach for yours. Touch our hearts and reassure that your love is eternal.

Amen

Visual Changes and Driving

Before we tackle the issue of taking the car keys, we will explore why it is so critical to do it.

An abnormal build-up of proteins in the brain that kills cells and damages connections between neurons is a result of Alzheimer’s disease. Most people are aware of symptoms such as confusion, memory loss, personality changes and other kinds of cognitive decline. Some lesser known symptoms can include visual problems. Trouble areas are spatial relationships, narrowing periphial vision and depth perception. Some patients develop trouble reading, following moving objects, or have problems with contrast.

Driving requires having great vision. Imagine driving in traffic without having the ability to judge distance. Take away your peririphial vision. Stop at a red light with no depth perception. Now remove the abilty to read and process trafiic signs. I can see red lights and hear sirens in my head now especially having spent 22 years navigating traffic in a large city.

A fender bender would be a blessing. What if a child ran in front of the car and you did not see them coming. Could you live with the horror of hitting that child? No one wants that. The independence of an adult driver with dementia is never worth the life of a child. Take time to let this scenario to sink in. Now think about how fast this stress would escalate the person with dementia’s decline.

Getting lost is not the real problem. We can track phones and vehicles now. There may be hours of crying and praying but technology is available to help locate a lost loved one. Recently, I was traveling home from the city. Our farm is just ten miles from the state line. A car was moving at about 15 miles per hour in a 45 zone. Cars were changing lanes and zipping by. I slowed as I passed and glanced over. A white haired woman was looking around as if lost. I pulled over at a gas station. My plan was to get behind her and call 911 to come. Amazingly, she pulled over at the same station. I watched as she pulled out her phone. I slowly approached her car and tapped on the window. When she opened it she was already talking to her son. I asked if she was alright. She informed me that she was talking to Rick as if I knew Rick, I asked if Rick was her son. She said yes. I asked to talk to Rick. He informed me that his mother was supposed to be at a doctor appointment. I had him tell her to follow me and led her back to the appoinment.

She lived three counties away and was a few minutes from being in another state! God placed me in her path that day. When she never returned from the appointment, a family would be frantically trying to find her.

Hopefully, I have your full attention now. Take the keys for everyones safety.

There are things to consider now that you understand the visual changes. If a person tends to wander, this gives you knowledge. Place a black mat in front of exterior doors. Many perceive this as a hole and will avoid it. Add a lock at the top or bottom of the door. They tend to just focus on the handle. Paint the door the same color as the wall. It works as camoflauge.

If you go read the previous post on meals, the placement of food on plates may make more sense when you know that visual changes occur. To help navigation in your home declutter. Simplify decor to create a calmer enviornment for them.

Some visual skills may sharpen. They will read your facial expressions like a pro. Your stress will be reflected back because they can tell when you are angry or irritated with them.

They will see people and things you do not see. The woman in the mirror that she sees may not be her. She may think it is a stranger in the home. These things occur and it is their reality. Cover the mirror if it becames a huge issue. Agree that the non existing cat on the sofa is cute. My mother-in-law called to tell us a lion was in her flowers in her room. We thought maybe she saw the petals as a mane. The next day she called to tell us a fairy was dancing in the flowers. She was known to have delusions so we went to visit. Upon arriving she informed us a lady was in the flowers.

Promptly I commented that the flowers were drying out and needed to be tossed. We promised to bring new ones the next visit. I passed a nurse on the way to the trash can. She laughed when she saw me. She had been having to look for animals and people in that bouquet too.

If you just saw a monkey in the flowers, maybe you should get tested. Hey, I couldn’t resist. It is Saturday, and we all need a little humor.

Word for Today

Matthew 5:16

In the same way, let your light shine before others, that they may see your good deeds and glorify your Father in heaven.

Song for Today

Prayer for Today

Dear God,

I praise you for the many times I have seen you in my life. Your faithfulness remains the same as my life changes. Help me to trust more that you will be with me on the darkest nights and the brightest mornings. Help my loved one who struggles with dementia to always see you in the hearts and soul.

Amen

Are You Even Listening?

Did you think I was addressing almost everyone who has earbuds in or maybe teens with messy rooms? Oh, it could be applied so easily to these. My husband listens to podcast while working on our farm. He walks into the house and ignores me because he forgets to turn the podcast off. Nothing is more frustrated than feeling unheard.

When a person has Alzheimer’s disease they can still hear. It takes their mind longer to process the information. When speaking with them you should slow your speech down. Use simple language with words that are easier to understand. In a conversation wait and let them attempt to reply to you.

This will take an effort on your part to restrain yourself from moving at the pace you are used to. Many of us are already thinking of our response when someone else is speaking. Perhaps, having to break that habit will help us become better listeners. The person you are now communicating with deserves your full attention.

Spouses are guilty of answering for their husband or wife when with others. This is their attempt to protect their spouse from embarassment. It becomes second nature. It happens especially when other family members are around. That is why children are shocked when they finally realize their parent has mild cognitive impairment. Often a caregiver passes away first and the children scramble making decisions about the other parent’s care. They got blind sided because the disease had been hidden so well.

Pay attention when you sense the smallest mental decline. Take the parent you are concerned about out for a walk or drive and pay close attention to their communication with you.

It is a wonderful gift that hearing is not the first sense to go with Alzheimer’s because music becomes an amazing tool. Please watch this video clip. It shows you what words have a hard time explaining. Grab a tissue.

Music can be extremely effective with people who have Alzheimer’s. Choose the music you use carefully. Remember to use their preferred songs and artists. Make selections from decades ago. My mom was nonverbal. I taught my granddaughter a song that mom had listened to as a teenager. When my granddaughter got to the chorus my mom said a few syllables while smiling. We had a breakthrough and they connected. I will always cherish that memory.

Many pianist still have muscle memory and can sit down and play. While volunteering in a memory care unit one day, I heard hymns coming from a baby grand piano. I turned to see one of the residents playing with total contentment on her face. The director of the facility informed me that her husband moved their piano there when she moved in.

Loud noises will startle someone with dementia. It is absolutely vital for you to stay in the hospital room when the patient has dementia. Constant voices in the hall, staff going in and out, beeping machinery, and sirens outside create fear and only add to the confusion of being in a strange place. Your touch and voice can be reassuring.

They are always listening. Do not talk about them and their condition in their presence. Show respect and honor them. Never ask them a do you remember question. Instead, you could say I loved our vacations with the children to the beach. We had long strolls as the sunset and collectied seashells. The seagulls surrounded us when the kids threw them snacks. Just hearing the story may spark a memory in them. They may then join in the conversation. Taking a photo to share while you recall the memory would be nice.

Even when they tire and their eyes close, they may be listening. Just the sound of your voice brings comfort. Talk about football, dancing or whatever topic they once enjoyed discussing.

When giving directions keep it simple.

Wrong Way –

We are going for a walk. Put your socks and shoes on then, grab a jacket from the closet.

Right Way –

Here are your shoes and socks. Put your socks on. Now put your shoes on. Let me help you get a jacket because it is cold outside.

When you ask them to make a choice keep it simple.

Wrong Way –

What doe you want to wear today?

Right Way –

Would like to wear the blue shirt or the red shirt?

Keep in mind that mutiple auditory inputs at once definitely become noise pollution. You may be able to hear two conversations at once, but they just hear lots of noise and struggle to keep up. Avoid crowds and parties when this becomes an issue. Each day is a struggle in processing all they hear. They get exhausted. Be patient.

Word for Today

Luke 8:15

But the seed on good soil stands for those with a noble and good heart, who hear the word, retain it, and by persevering produce a crop.

Song for Today

Prayer for Today

Dear God,

I praise you for giving us the gift of music. Help us to use it to brighten the lives of our family member with dementia. Help us to create moments for them that produces joy and they still feel vibrant and alive.

Amen

Why Are Meals So Hard?

Two of the first senses affected by Alzheimer’s seem to be vision and smell. Today we will explore how this impacts meal time.

My mom lost her sense of smell years before other symptoms appeared. This did not affect her eating habits for a long time.

Then a healthy diet flew out the window. Suddenly sweets were all she wanted to eat. This was so strange because the same thing happend with my grandmother. My aunts would take candy to my grandmother. My mom would find the sweets and hide them. Her sisters would find them and then hide them somewhere else. They would take them out of hiding for their mom when my mom was not around. They called my mom the sugar police. My mom was trying to give my grandmother a healthy diet. Her sisters wanted to let her have whatever she wanted since she was not diabetic.

Who was right? I think both were. A time comes when you continuously make adjustments finding what they will eat and strive to find a balance. Mom loved peanut butter pies. I jumped on making them in bulk and freezing them for later. This was a way I could reduce the sugar and add more peanut butter. The cream cheese and peanut butter were adding protein. You keep trying until you find what works. You can slyly be the sugar police.

Later in the end stage of the disease mom was limited to pureed food and thickened liquids. She would often close her eyes when we tried to feed her. I noticed that she barely stuck her tongue out to touch the spoon. If it tasted sweet, she would open her mouth. If it was not, she refused to open her mouth.

I had an aha moment and asked that yogurt or softened ice cream always be with her tray. Many mouthfuls of beef stew, green beans and other items were dipped into the yogurt or ice cream. Don’t laugh. It worked.

When vision changes and a table is too busy with patterns or color, they have trouble distinguishing what is their food and get confused.

The images above will help you understand a little better. Vanilla ice cream fades into the white dish. Mixed colors and patterns can bring frustration. Most of us love presentation and a beautifully set table. Those with dementia do not. Look at the floral plate carefully. The flowers look very similar to cookies. Imagine trying to pick the cookie up. This could set off a tirade. No one wants a food fight. Imagine blueberries in a blue bowl or green plate with turnip greens, broccolli and asparagus. It would all blend when they looked at it.

Keep in mind that they may not always recognize what is food and what is not. Once we were at a Christmas party in a skilled nursing facility. Last minute guests arrived and handed gifts out to each resident. The gifts were bottles of shower gel. I warned my husband to help me watch the residents because the staff had their hands full. My husband leapt to his feet just in time to grab a bottle before a woman turned it up to drink! The gift givers had no idea that a pretty bottle could mean something good to drink.

When it comes to food, keep things simple. On a white plate for breakfast you could have bacon, eggs and strawberries. Each could easily be seen. They may be calmer and eat more.

You can use essential oils such as citrus to stimulate their appetite. Play calm music softly in the background. Create a peaceful atmosphere and do not rush through the meal. Avoid large family gatherings when you notice that the stimulation is too much.

You will reach a point that using silverware is a challenge. Cut their meat before presenting their meal. If they have essential tremors or tremors from Parkinson’s Disease, you can find weighted silverware that helps stablize their hands.

When using silverware is not feasible, offer finger foods. Cut sandwiches into quarters. Other suggestions include fruit, vegetables and maybe a dip to make it more enjoyable. As I stated earlier, you will make adjustments as the disease progresses.

Just in case you are feeling the weight of how things will change, I have included a cool finger food idea. Yes, this is a child; however, if it gets healthy food down, go for it.

You will need to educate yourself about pureed food and thickened liquids in case you need to know about it later. People with Alzheimer’s can develop swallow issues in the last stages. I will try to expand on this in a later post.

Amazon has some weighted silverware. I have also found scarfs that snap in the front and act as bibs. These are beautiful and help preserve a little dignity. Amazon and etsy sell these but if you sew, they can easily be made. Print a card for dining out to hand your server explaining that your loved one has cognitive decline and you will order for them. This saves awkward and embarassing moments for all involved.

Since we are talking about meals, I have a kitchen tip. Place a placemat or piece of cardboard over your drawer that has knives. They will not look underneath by the time it is dangerous for them to safely use knives. If you find it necessary to unplug your stove, an electrician can install a switch out of their sight.

I smell my dinner now and it smells wonderful so I am wrapping this post up with a thankfulness for having an intact sense of smell.

Don’t get discouraged! You have got this under control. Together we an be the best caregivers ever.

Word for Today

Proverbs 16:24

Gracious words are a honeycomb, sweet to the soul and healing to the bones.

Song for Today

Prayer for Today

Dear God,

I get caught up in worrying and fretting while being a caregiver. Guide my steps and give me wisdom to face the task at hand. Help me to remember that gracious words are sweet to my soul and healing to my bones and the loved one I care for.

Help me to accept that changes will come and as I grieve during the process and I know you will catch my tears and hold me in the palm of your hand.

Amen