Humorous Moments Lighten the Load

Sometimes stress can get really heavy when you are a caregiver!

We can learn to see the humor in things. You never laugh at a person. You laugh with them or at a later time with friends or family who understand the difficulties you face.

When you are awakened in the middle of the night and asked “What are you doing?”. It doesn’t seem funny. Your fuzziness clears as your dad wants to know if you had decided to take a nap too. He is very cheerful and explains that he took a nap, showered and was headed to the dining room for dinner. I told him to go open his blinds and look outside. He replied,”oh my it is so dark”. I then told him his clock might say 3:30, but it is actually in the morning, not the afternoon. I then told him to go back to sleep for a bit. He informed me that he was wide awake.

I hung up the phone and called the nurse station at his assisted living facility and requested sometime pay dad a visit and encourage him to try to go back to sleep. I then complained to my husband and tried to go back to sleep myself. After a few more hours of sleep I could smile about the whole thing.

My dad had become urniary incontinent. He had always been a sharp dresser and cared about how he looked. I struggled with how to handle this situation while allowing him to keep his dignity. One Sunday he went to the bathroom and returned to the service. He was wet and he smelled. I tried my best to get him to the car, but dad was very talkative and an extreme people person. I know that smelled him.

My husband asked to handle the situation. He took my dad aside and commented that dad had always looked nice. He mentioned that perhaps dad didn’t make it to the restroom fast enough sometimes. He suggested that if dad would wear depends he might be able to hide this from everyone. People would not know and dad might not smell of urine. Dad agreed. They bought depends.

The next week I got a call that surprised me. All of my apprehesion about talking to dad was for naught. Dad had walked into my aunt’s home and proudly announced that he was wearing depends and they were wonderful. A sigh of relief crossed my face. After hanging up the phone I had a good laugh.

The next story actually involves a phone call. I got a call. The id let me know it was from my dad’s phone. He immediately let me know that his phone was not working. I asked him whose phone he called me from. He told me it was his phone. I asked what the problem was only to be told “I told you my phone is not working”. I realized this conversation reminded me of the following:

Costello: What’s the guy’s name on first base?
Abbott: No. What is on second.
Costello: I’m not asking you who’s on second.
Abbott: Who’s on first.
Costello: I don’t know.
Abbott: He’s on third, we’re not talking about him.

I laughed to myself and assured dad that I would come over right after lunch to check his phone. He was happy and so was I.

How do you not act surprised when a woman would get mad at her husband and throw a glasse of water at him? A friend discovered her dad had used her yeti cup to relieve himself while waiting for her in the car. What do you do when you find your clothes folded and placed in the kitchen pantry? You laugh or you cry. Choosing laughter is better.

Sometimes you cause others to laugh as they watch you deal with behaviors. Sometimes you laugh watching them deal with behaviors. I remember sitting in a hospital room with someone who ate an entire bowl of chocolate ice cream with the nurse handing them pills to swallow between bites. Satisfied that the medication was administered, the nurse turned her back. I watched as the woman promptly spit all six tablets out. After realizing she had mastered the art of cheeking pills, I then wondered how many times she had done this. My humorous thoughts about her talent dissapated as the horror of how much missing her medications had excellerated her behavior problems, falls and mental decline.

Remember it is okay to laugh as long as the person you are caring for is laughing with you. When my no nonsense mom peeked until the table giggling and waving at me I had to laugh. Her frostie had been dropped and I had climbed under the table in front of everyone to recover it. Just as I started to climb out quietly, she began to act like one of my young grandchildren. So much for sneaking out quietly and hoping no one had seen me. Hopefully, some one dealing with a parent with dementia learned humor is a great coping skill that day.

When you are out in public and your parent’s pants fall to their ankles, simply smile and pull them up. When someone with dementia reachs over and takes your ice cream, let them have it. Laugh at the calories you just skipped.

Humor is in fact a tremendously helpful coping skill. If you find something funny, don’t feel guilty.

I mean no offense to anyone but maybe God laughed as he created a platypus, an ostrich or a giraffe. As our creator, he has given us creativity. Use it to make life easier when you can.

Word for Today

Proverbs 17:22

A cheerful heart is good medicine, but a crushed spirit dries up the bones.

Song for Today

Prayer for Today

Dear God,

Thank you for giving me creative ideas as I navigate caregiving. Help me to choose to laugh and enjoy life when I can. Guide me as to when laughter is appropriate and when I need to be sensitive.

Amen

A Grateful Heart

“God’s grace is the bridge that carries us from our brokenness to His wholeness.”

When you love deeply, you risk facing brokenness. As a caregiver you dig deep into your well of love to shower on someone else. That love is not always recipocated or recieved. The bible talks about wells that were dug. The enemies of Abraham filled the wells with dirt. Later when wells were dug, others claimed the wells as theirs. God has always provided when the enemy attempts to destroy. The deep well of your love is critical to guard from the enemies attacks so the love pouring out of it is pure and refreshing to others.

A crack in your heart begins the first time a family member shows behaviors toward you that you never have seen before. A kind and generous father may become angry and say and do things that you never thought you would see. Your childhood hero has transformed into a demanding and selfish person. Keep in mind that your hero is still there. A nasty disease has reared it’s ugly head. You have to allow God to sew a stitch in the crack of your heart and reach deeper to love while you yourself are hurting. I know that as I have hand stictched the binding onto quilts for each of my grandchildren I thought of them and prayed for their lives. Imagine the grace and love God is stitching into your heart with each stitch He sews.

As Alzheimer’s progresses you will see a person’s life going in reverse. I was watching a parent become incontinent at the same time a grandchild was being potty trained. With the grandchild, it was exciting. First steps toward independence were being taken. We would assist as they mastered their new skill. Cheering them on was fun as we saw their excitement. Assisting a parent or spouse brought sadness as their independence was being stolen away. You tried to preserve their dignity. You went shopping for depends with a sadness inside.

Sitting by my mom’s side and spooning yogurt into her mouth was done with vast amounts of love. We had now truly reversed roles. My heart was filled with gratitude for the woman who had tended to my needs for so many years. The memories I had were not always wonderful, but thanking God for the great ones and forgiving for the few ones that were not so good allowed me to heal. A healed heart and a grateful heart hold so much more to be poured out. God sewed the gaping hole together so I could pour love more freely.

I was at my dad’s side when he grew confused. He had oxygen tubing in and was irritated by it. I reached to adjust the tube after he removed it. He grabbed both of my wrists and cursed. I calmly reassured him that I would take it off for a while and then exited the room. My heart was breaking because I had never experienced that behavior or heard those words come from his mouth before. A protective relative followed me out. She was quite angry at my dad. Tearfully, I told her this was not my dad. This was a man whose cognitive decline were acting and speaking. God had allowed me to keep loving my dad as if this event had never happened. God had reenforced the stitched seams as the event unfolded.

A day will come when someone looks you in the eye and doesn’t know who you are anymore. That is when it feels like your heart rips in half. It hurts intensely as the hard truth sinks in. You may have to retreat to a quiet place for God to heal your heart and then recover slowly. Day by day you will feel strengthened as you pray and rest in God’s peace. His Intensive Care Unit is outstanding. When you exit and are ready to face the task at hand, you will have a grateful heart filled with overflowing love once more.

Day by day God will hold your heart in his hands.


Word for Today

Colossians 3:16

Let the message of Christ dwell among you richly as you teach and admonish one another with all wisdom through psalms, hymns, and songs from the Spirit, singing to God with gratitude in your hearts.

Song for Today

Prayer for Today

Dear Heavenly Father,

You amaze me with your healing and forgiveness. Teach me to forgive when others misunderstand or reject my love. I am guilty of wanting to quit loving as deeply as you ask of me when I am hurting. Tenderly hold me and restore me so that I can pour love out to those who are depending on me to meet their needs. I want to serve with a heart of gratitude.

Amen

Welcome to Our World

I read a news article today about what happened to our brains after living through the recent pandemic. Studies have been conducted about this and results are being presented. I just have to share a quote from the study with you.

“But we believe the cumulative stressors of the pandemic — such as prolonged isolation, disrupted routines, reduced physical and cognitive activity, and economic uncertainty — likely contributed to the observed brain changes,” Mohammadi-Nejad

We all know what it is like to experience all of the above for many years at a time as caregivers. How have we even survived? We have shown excellence in beating the odds and have God with us. We must be better equipped than most. ( Not judging…just observing).

Yes, this may sound snarky and uncaring toward those who struggle. I am venting and letting off steam for all of us who have learned to keep going when things are extremely difficult. Life can be very challenging and sometimes the ones who whine the loudest get all of the attention. Most caregivers I know are too busy to whine. We are equipped because we keep striving and learning. We fall on our knees when we are overcome and feel helpless.

Seriously, we do live in a world where isolation, stress, interrupted schedules and chaos can be the normal for many years as the person we care for is losing ground and we live in a state of flux where flexibility is critical. Please know that you are doing incredible things in a challenging situation. I would not wish this burden on anyone. Truly it is the heaviest one I have ever tried to survive. It was only when I chose to see caregiving as an act of love that I could see the positive side. It was only when I admitted that I didn’t have all of the answers that God became my guide in everything.

Our pandemic is known as Alzheimer’s disease. We have no vaccines. We sometimes feel abandoned because people fear the unknown. We do have others caregivers living in our situations. We are not alone! We have God and we have each other.

Word for Today

Ephesians 4:2

Be completely humble and gentle; be patient, bearing with one another in love.

Song for Today

Prayer for Today

Hello God,

It is me again just taking time to acknowledge you. When life is hard and I continue to press on, give me strength and people to stand with me. I thank you for allowing me to view caregiving as an act of love. You are my counselor, provider and comforter. You are the hope I stand on.

Amen

Inviting Help to the Caregiving Party

Communication has changed drastically and we still have not developed the skills to use it with effectiveness.

When I was younger we had a home phone that was on a party live. Due to limited resources in rural areas , Bell South provide service that connected several homes. Each family was assigned a certain ring. If anyone on the party line was talking, it prevented anyone else from using the line. Then any neighbors on your party line could ease their phone off the hook and ease drop. Gossip spread fast.

Prior to having our own line, my high school sweetheart, who later became my husband, would call and call only to get a busy signal for hours sometimes. When he finally was able to reach me, he would often detect someone picking up and listening. He would usually make weird remarks until they hung up. As I stated earlier, you have so many of avenues of communication now that my party line sounds like an extinct dinosaur. I gladly adjusted to new technology and appreciate the convenience.

This week I recieved a text with an evite attached. A cousin had sent it and asked me to send it to others for her. My phone then started getting texts with questions about the event. My thoughts were, “Hmm, I sent the evite as asked, but obviously no one paid close attention as they scanned one of their large number of text that day.” Had they carefully read the evite they would see I was just the messenger and not the host that could answer their questions.

People have so much communication flowing today that they often miss important details. Can you imagine how full the skies would be if everyone used a carrier pigeon for every text, call, facetime sessions and emails? Oh, I forgot to include instagram, tiktok and others.

Effective communication takes thought. Way too often, we fire off a quick text that gets taken the wrong way. The most effective communication is looking into someone’s eyes and watching their facial expressions. Men can be read easier if you know what to look for. A smile accompanied by tightened jaw muscles betrays their true feelings. Caregivers learn to calm themselves before talking to someone with dementia. We should practice this same hesitation and take time to phrase requests for help in a way that will be recieved correctly.

Caregivers find it neccessary to send invitations to join their caregiving party when overwhelmed. This invitation might be ignored. It might offend someone. It might lack the appeal to tempt some to accept. What would you even say? Let’s give it a try.

Dear Family Who Are Too Busy Too Care,

I am drowning over here. The dishes are piled in the sink. Laundry sits in baskets waiting to be done. The grass needs mowing. Mom has hidden my keys and her glasses today. She has 2 doctor appointments next week. We are nearly out of groceries and I am exhausted.

Would you like to drop by some day to help?

Wrong approach! Do not expect help from this invitation. This approach will not work. Expect criticism on your ability to handle things. Expect judgment about your complaining and whining. When communicating with family and friends, remember you will have to take a deep breath and carefully choose your words. Don’t just hint that you need help. When hints aren’t effective you will end up frustrated. Stating that you need help can make you feel guilty. It is hard to admit that you are struggling. It is hard for family to not get defensive because they feel guilty for not helping more.

After praying for wisdom and seeking God to prepare hearts, attempt an honest conversation with the person you are asking to help. Tell them your concerns and ask for possible solutions. Try something like this.

“Jane, mom has a cadiology appointment next Tuesday at 2 pm. My car needs an oil change and I really would like to get my hair cut. Could you please take mom for me? Even better, I will take mom and let you come for a visit on Friday from 1-4. She would love singing with you and I could schedule a haircut, get the oil changed and bring dinner home for all of us to enjoy. Which might work best for you?

It is alright to share that you are exhausted. Explaining the changes in behavior you are dealing with and a lack of sleep due to your loved one roaming at night might help your family have a clearer understanding of how difficult caregiving is.

Communication is vital for families who have someone with dementia. Find time to meet together. The quote below sums up effective communication.

“You can talk with someone for years, everyday, and still, it won’t mean as much as what you can have when you sit in front of someone, not saying a word, yet you feel that person with your heart, you feel like you have known the person for forever…. connections are made with the heart, not the tongue.”
― C. JoyBell C.

Take a break. Make a list of things you need help with. Decide who can help you. Carefully word your request and doing it over a cup of coffee may help. Choose your timing.

I know you are the one overloaded and should not have to make the request. I have been in your shoes. Don’t hold a grudge against others for not just seeing your need and offering their assistance without the ask. Everyone is wired differently.

Be blessed and pray for God to order the steps of others to come your way. Your most important communication will always be with God.

Word for Today

Moses had been given the task of being a leader over a nation of many. You have been given the task of leading someone on the path of Alzheimer’s and God’s words spoken to Mose can be applied to you.

Exodus 4:12  “Now go; I will help you speak and will teach you what to say.”

Song for Today

Prayer for Today

Dear Heavenly Father,

Here I am again feeling frustrated and exhausted. Forgive me for getting angry and hurt when family and friends abandon me in the task of caregiving. Teach me how to ask for their help. Prepare their hearts to hear my request. Let my communication be spoken with love and not sound like whining and complaining.

Amen

When the Dam Breaks

Today you will learn a bit more about me and my caregiving journey. The photo above is of a dam near my home. There is a history about it that I am sharing to help you better understand my own story.

According to my research over 50 men died during the construction of the dam. A local business has photos taken during the construction and stories I heard from family were that a few of the men fell and were buried in concrete.

The Wilson Dam was constructed in between 1918 and 1924. The shoals on the Tennessee river were difficult to navigate; hence,the dam was an attempt to tame the river. Today it produces power for the Tennessee valley. Families travel over the dam, power their homes and enjoy water activites without knowing the price some men paid.

I realized one day that I too had built a dam to try to control the turbulent emotions that being a caregiver had produced in me. To be strong, I buried pain and grief so that I could be an effective and loving caregiver. My mom had Alzheimer’s. It hurt me to the core watching her fade away. I was hurting so badly that I didn’t even realize that my dad was losing some cognitive ground as well. There was not enough time to process the changes. I shoved the fear, anxiety and heartache aside on the days that I didn’t take time to lay it at God’s feet.

When my mom died, I was not overcome with debilating grief. Dad needed me and I thought that the gradual grief that occurred as I lost bits and pieces of my mom must have left few tears to shed. Then my dad passed and I felt grief, but it still seemed like a wave of extreme grief would hit but it didn’t immediately.

Time passed and tsunami waves did begin to wash over me. Life isn’t always easy, so I shook the water off until other situations in life rattled me. I thought I was doing better and that I had given things to God.

One day out of the blue, a trigger hit. The patches I had applied to the dam could only last so long. When the dam broke, I broke. All of the stuffed emotions rolled over me. As I gasped for air, God used my husband to hold me and just let me cry.

Have any of you been building a dam to hold back your river of emotions? Many of you are dealing with unforgiveness over things in your past. Some of you have regrets that you didn’t choose to lay some things aside and make visiting your loved one a priority. Perhaps you live in fear of getting a terminal illness yourself. Do words run through your head that you wished you had said?

If your loved one is still alive, go and take care of things hidden in your dam. If you feel the stress and see fractures in your dam, find a place to hide and let emotions go. God is a great listener. A friend of mine felt like a pressure cooker and felt she had no place to let off stem. She visited the ocean and slipped out for an early morning walk on the beach. With no one in sight, she faced the ocean and yelled. The ocean sounds covered her voice, but she walked in peace.

Burying your emotions is only a very temporary solution. I understand that you have to be strong until a crisis is over. I encourage you to monitor your emotions. You will reach a point of needing to let steam off. Find a friend you trust and talk it out. Do not be guilty of allowing your spiritual, physical and mental health to suffer. I ignored a health issue for way too long, almost too long. Unusual circumstances happened in the year that my mom passed away. I had to slow down long enough to address a health issue. A surgery and biopsy revealed cancer cells that were caught just in time.

Grief can ease as we replace it with thankfulness for having a person in our lives that we were so blessed to have known. God has healed my heart in a way that no person could. I still miss my parents intensely.

Word for Today

 The Lord thy God in the midst of thee is mighty; he will save, he will rejoice over thee with joy; he will rest in his love, he will joy over thee with singing. Zephaniah 17:3

Song for Today

Prayer for Today

Dear Heavenly Father,

I praise you that you are a refuge I can run to when I feel the weight of the world on my shoulders. You are faithful to bear the load I carry. There are days when I understand the outpouring of psalms that David wrote. They are often extreme words of thanksgiving or sobs of a broken heart. You hear my words that flow from me.

Heal and restore me so that I can continue on. Touch my tired body. Renew my confused mind. Give me hope as I face trials. When I am guilty of hiding my emotions, you are searching my heart and waiting for me to simply pour it out to you.

Thank you for loving me.

Amen

What Happens Now?

Graduating from being a caregiver is much like graduating from high school. The vast difference is you are wiser and well seasoned with life experiences.

When you graduate from high school you leave the close knit group of friends filled with hopes and dreams. A whole new world awaits for you to explore. You are excited and a bit afraid of stepping away from the familiar.

A caregiver has usually had their adventures of youth and is in the midst of following their dreams for the golden years.

Then unexpectedly your world shrank and your dreams were shattered by a disease called Alzheimer’s. Friends slowly faded away and your focus became narrrower and narrower. You found yourself in a new role of supporting someone who once was strong. One long day followed another as both of you adjusted. Sometimes you gave up hobbies and activities. Sometimes happiness was replaced with doubt, loneliness, heartache and confusion. Many days you answered the same question over and over.

You eventually made adjustments. You discovered your strengths you didn’t even know you had. You poured love out knowing the person you loved could feel it, but didn’t have much left to express their love to you. A smile or twinkle in their eye was enough on the rare days this occurred.

I know men and women who gave of themselves for years to their spouses. I am one of those children who had to become the caregiver of my parents even when they no longer recognized me as their child. Then the day comes that you say goodbye. Tears flow and hearts break. The life we have known ends and we are left picking up the pieces of our heart and trying to move on. Clothes and possessions have to be collected and dealt with. Small things trigger the waterfall of emotions. For me, I was cleaning out of my parents house . A guest room had a small bowl of potporri. As I poured it into a trash bag the scent of mulberry overwhelmed me. Mom’s favorite scent hit me hard. My husband came looking for me and held me as I sat down and cried. There is a season of readjusting.

Instead of being a senior in school you are a senior in life. You are dumbfounded in trying to process who am I now and where do I go from here. Finding your new role is not always easy. Take your time and pray about your next steps. Explore nature. Reconnect with friends. Try a new hobby.

Perhaps, a wiser and more mature you still has lots to offer to the younger generation. I thank you for the tremendous and valient effort you put into being a caregiver. You are worthy of being recognized as a hero. Only God knows your heart and only God can heal your pain. You will hear the words “well done my good and faithful servant” one day. While waiting, accept my virtual hug.

We will always remember the years of caregiving and the friends we made along the way. Much like climbers on Mount Everest, we struggled, we became stronger and have earned a rest.

Word for Today

Isaiah 49:13

Shout for joy, you heavens; rejoice, you earth; burst into song, you mountains! For the Lord comforts his people and will have compassion on his afflicted ones.

Song for Today

Prayer for Today

Dear God,

I thank you for the strength, compassion, and tender mercy you poured into my life during the caregiving years. Day by day you gave me the determination to be the best caregiver I could. You comforted me when the days were hard.

Today I ask that you give me opportunites to encourage caregivers around me. Remind them that they are loved and not alone.

Amen

Rest Relax Refresh

In theory these words are awesome. In reality as a caregiver they sound impossible.

I can relate. When I was a long distance caregiver for my mom, there were times that I longed for relaxation and fun. I had just returned from a couple of weeks with my parents. My grandchildren were in the backyard pool splashing and laughing. I longed to join them; however, exhaustion won over and I found myself on the front porch swing with tears flowing. Guilt prevented me from simply telling them that Grandma was not up for their visit and just wanted a good nap. After a few minutes of alone time, I dried the tears. I forced a smile and jumped into the pool with them.

I don’t consider those moments a pity party. I consider them honesty. I desperately needed a few moments of solitude before joining the real party going on at the pool. My little girls had a way of refreshing me with their silly and carefree play. Tension eased and I think their high energy restored mine a bit. I know their hugs refreshed my heart and soul.

We require rest. We have to find ways to relax and then refresh.

Financial and time constraints may prevent spa trips and reading a favorite book. Here are a few simple things all caregivers can do for themselves and with the one they are caring for.

Sniff an orange. Enjoy the citrusy aroma.

Take a walk.

Listen to music

Pet a furry friend

Learning to enjoy simple things rather than longing for bigger things is key to making the days easier to bear. Take a few deep breaths. Remind yourself that God has given you the ability to survive caregiving.

Word for Today

 I will refresh the weary and satisfy the faint. Jeremiah 31:25

Song for Today

Dear God,

Sometimes I forget that the rest I need and the refreshing I long for can truly only come from you. Forgive me for trying to push on without turning to you. I come today to simply say I need you each and every day. When I am not able to go on, you carry me and then gently set me down renewed and ready to care for others. With a grateful heart I can go on. Thank you for your faithfulness that is new every day.

Amen

Caregiver Ups and Downs

“Family means no one gets left behind or forgotten.” — David Ogden Stiers

It is summer in the south when blueberries, blackberries and peaches are turned into desserts, jams, and jellies. A few days ago juice ran down my arm as I peeled fresh peaches. I am enjoying peach cobbler made with my mom’s recipe while typing. Her birthday was on June 16th and she has been on my mind. I still find myself using her recipes when cooking.

While reflecting on mom’s final years, I have no regrets about making sacrifices to be with her when I could. I have lots of regrets that I didn’t always know exactly how to naviagate the compex plan of care that she needed. Most of us learn much as we travel down the road of caring for someone who is no longer the strong capable person we once knew.

Emotions run wild and changes happen faster than we expect. The disease outpaces our learning curve and we all end up drained emotionally, physically and spiritually. When this happens we need to pause and focus on what we have done right.

My number one thing that I feel I got right was learning to make the most of every situation when mom and I connected. Early on we could shop together and enjoy my grandchildren and her greatgrand children. I let her help with holiday meals in ways that she could.

We traveled a few times to her favorite places. Answering her repeated question about what time we left could have stressed me, but I made it a silly game. My answers changed each time she asked. When the alarm went off. We left at 6 am. We left when the rooster crowed. We left as soon as dad packed the car. These answers kept her entertained.

I planned carefully for our last trip. My thoughts were that it could be a difficult trip. I prayed for a peaceful time and God answered. We found a lovely one level cabin in the mountains near Cades Cove in Tennessee. Mom loved the large yard that had a flock of wild turkeys visit. On the day we drove to Cades Cove light snow flurries fell all day. Mom was calm and loved every moment. I cooked meals in so she did not have to be in crowded restuarants.

As mom’s disease progressed, I could enjoy the moments that she became silly and like a playful child. It was a side I never would have seen if she didn’t have Alzheimer’s. Inhibitions were torn down and she lost her resolve to always be the strong one who was responsible for everyone else.

She was the oldest child and helped care and protect her younger siblings. Two of her sisters had been told that mom was a swallow risk as the disease progressed. They just knew that a piece of gum would help mom have a fresh feeling mouth. They gave mom the gum and she chewed it happily. When they had to leave they needed to retrieve the gum. With a swab, they tried to fish the gum out because neither of them wanted to chance being bitten. Mom promptly clenched her teeth on the stick and grinned. It took over an hour to accomplish removing the gum. A nurse told me she went to investigate the giggles and laughter she heard coming from mom’s room. There was so much joy between the sisters that she asked me to forgive them for the gum when she relayed the story. I did forgive them. They were learning how vital it was to make the moments of connection count.

In her final years, we connected when I called her Linda, not mom. She could not relate to being a mother, but she knew I loved her and was supposed to be there. I would gently massage her hands with arnica oil to help her stretch them without pain. I knew the music to play on a bad day. On really bad days, I sat by her side with tears as I prayed for God to give her peace. I placed my head on a pillow next to her and told her what a wonderful person she was.

About five days before mom moved from this earth to her heavenly home, she had tears when a sister called. She squeezed my hand when a grandson called from across the country. She squeezed the hand of a granddaughter and great grandchild who stood by her bed. This continued most of the afternoon as family calls came in. I wondered if she really knew each voice. Then my sister in law called. I placed the phone near mom and had it on speaker phone. She thanked mom for raising an amazing son and then assured her that she had hard it had been since she was raising his 6 kids. Mom tried to laugh. We all knew that for that afternoon we had all connected. Tears of joy abounded.

Do what you can to make those heart connections. You will never regret doing this. Making new connections may require forgiving the one you care for if any hurts are in your past. This is a tough one, but it will become necessary for you to do this so God can heal your hurts and enable you to love more deeply.

Word for Today

Ephesians 4:32

Be kind and compassionate to one another, forgiving each other, just as in Christ God forgave you.

Song for Today

Prayer for Today

Dear God,

Thank you for showing us how to love and provide care for those who can no longer take care of themselves. Give us ideas for keeping our connections.

Amen

Kitchen Table Talks

Many people will walk in and out of your life, but only true friends will leave footprints in your heart.

Eleanor Roosevelt

The past week has been filled with old friends, new friends and family. Some of the days were carefully planned and others were unexpected occurances. Close freinds came for a brief visit of a few days. We hugged, shared meals, laughed and took them sightseeing in our area. One of them is struggling with his mother’s care. He goes to visit her often, but feels guilty that his sister is bearing most of the load. My husband and I listened and shared advice. Our hearts truly felt his pain.

On one of our adventures we met a couple who struck up a conversation. The lady voluntered that she had recently lost her mother to Alzheimer’s. She was generally surprised to learn that I lead a support group and wanted more information.

After our friends left, I heard a knock at the door. Our neighor had dropped by to escape his home for a few minutes. Tension was high and he needed to escape. His elderly mom has moved in with him and his wife works in a stressful job from home. That in itself may have some of you nodding your heads. We have all had days that we needed a little escape. Finding a safe place to do that can prove to be difficult. He felt safe enough that he found an excuse to drop by later in the week to let us know things were better.

Last night my brother-in-law came over for dinner. After eating, we settled in our family room to talk. Eventually, he had questions about dementia and wanted to know how to help a friend. He has experiece from dealing with his mom and was well aware that symtoms can vary.

You may find yourself interacting with a caregiver who needs a listening ear, word of encouragement, practical advice or prayer. These moments often happen in unexpected circumstances or times. Maybe you are the caregiver needing that for yourself. My prayer is that God continues to direct paths to cross on this journey. I know I have been in both positions and have been so fulfilled when friendships have developed along the way.

Have a blessed day and trust God to send someone your way to comfort you or for you to comfort.

Word for Today

Proverbs 17:17

friend loves at all times, and a brother is born for a time of adversity.

Song for Today

Flashback song to make you smile

Prayer for Today

Dear God,

Thank you for always knowing how fragile I am at times and sending someone my way. Thank you for the friends I have made along the caregiving journey. Touch their hearts today as you have touched mine.

Amen

Tag…You Are It!

I always felt handicapped when on the playground as a child. My height as a full grown adult is only five feet. Most people run faster because their stride is longer. That feeling continues off the playground. On a vacation several years ago we were walking through Vancouver Cananda. Everyone in the group except me was 6 feet tall. Their casual stroll was a fast paced walk for me trying to keep up. After a long morning of sightseeing and a lunch in Chinatown, I found a bench and instructed them to continue on, I would wait for them and join the group later. They were frustrated and urged me to keep walking. I refused. I was exhausted.

Many times when a family member is diagnosed with Alzheimer’s disease, everyone panics and wants to run before they are tagged it as the caregiver. When we face uncertainty or a complex situation, we all find excuses. This is not uncommon or new.

Long ago a man named Gideon was hiding while grinding wheat. A group of people known as the Midianites had tormented the Israelites. They raided their fields, animals and land. The Israelites cried out to God for help. Gideon was simply hiding in a winepress and grinding wheat when an angel appeared. The angel told Gideon to gather an army to fight the Midianites. Gideon had an excuse. He responded, “my clan is the weakest, and I am the least of my family”.

We may feel the same way Gideon did, inadequate and a little fearful. We use many excuses such as ” I am too busy to take care of mom” or “she has always like you best so you would be better doing this”. What we are really saying is that this is going to be too hard for me. Tag someone else for caregiver.

God had a word for GIdeon. It was simple and plain but spoken in truth. “I will be with you” is what Gideon heard. As an experienced caregiver I can attest to that statement. God showed up each and every day on my journey.

While there are a vast number of books, training and podcasts for caregivers, they can only prepare and advise you from other people’s experience and knowledge. Every case of Alheizmer’s is different. Every day may even be different. I understand why you want to run away.

God was my guide on the journey of caregiving.

When I was traveling 6 hours each way God allowed me to find still waters. (Psalm 23:2)

  He makes me lie down in green pastures,
he leads me beside quiet waters,

When I had to make difficult decisions He lead me to the right one. (Psalm 25:9)

He guides the humble in what is right
    and teaches them his way.

When I floundered God sustained me and still does. (Psalm 54:4)


Surely God is my help; the Lord is the one who sustains me.

When my parents and In-laws passed away God comforted me. (Psalm 23:4)

Even though I walk
    through the darkest valley,
I will fear no evil,
    for you are with me;
your rod and your staff,
    they comfort me.

When people suggested I was not doing things right God reassured me. (Psalm 73:24)

You guide me with your counsel,
    and afterward you will take me into glory.

When criticism and judgements became harsh God whispered in my ear. (Isaiah 30:21)

Whether you turn to the right or to the left, your ears will hear a voice behind you, saying, “This is the way; walk in it.”

When the long nights of feeling helpless kept me awake God calmed me. (Isaiah 42:16)

I will lead the blind by ways they have not known,
    along unfamiliar paths I will guide them;
I will turn the darkness into light before them
    and make the rough places smooth.
These are the things I will do;
    I will not forsake them.

God didn’t send me an actual angel like Gideon had, but he used people who lended themselves to be God’s servants. Cards came in the mail. A stranger knocked on my dad’s door with a bouquet of flowers. A nurse found a quiet place in the emergency room to pray for me. A neighbor brought our dinner. Friends prayed, laughed and cried with me. My amazing husband walked each step of the way with me.

In parting, I readily admit that there were times when I longed for someone to slow down enough for me to tag them and say “tag, you are it”. Those thoughts were fleeting because I know what an honor it was to walk my parents to their final home in heaven. If you have been tagged, remember that God is with you.

Wondering what happened to Gideon? It is a really cool story. Dust off your Bible and read Judges 6 and 7. It definitely is reassuring to know when you get tagged by God, He goes to battle with you.

Word for Today


Surely God is my help; the Lord is the one who sustains me. Psalm 54:4

Song for Today I just couldn’t resist reminding you of other battles God fought.

Prayer for Today

God,

I am not sure why I have been chosen to be a caregiver. Humbled I come to you as my guide. Give me courage, patience and compasssion. Equip me for the journey and walk beside me each step of the way.

Amen